What aftercare following Robotic Prostatectomy

  • 26 replies
  • 118 subscribers
  • 1682 views

Hi All

after much back and forth on treatment options since diagnosis back in March I have now decided to proceed with surgery which will be done privately in London 

I was hoping though people who have had the surgery can advise me on what aftercare you can expect after surgery, I have heard mention of district nurses coming round to change dressings after a few days and then staples having to come out , this is before the catheter has been taken out 

the reason I ask is because I am not located anywhere near London where the surgery is being done, my treatment costs include 2 days in hospital , catheter removal and 30 days post procedure return to hospital if there are any related problems, at the moment I am booked into a nearby hotel but was planning on leaving upon discharge from hospital then going back when catheter is being removed but am now wondering whether to just stay in the hotel down there until catheter is removed especially if dressing are going to need changing and staples removed 

Any advice much appreciated 

thanks

Nick

  • About wind and stools. I can vaguely remember coming round after the surgery and constantly whining at the nurse about needing to pass wind or poo as my tum was weirdly pressurised. He was incredibly patient with me as I was 3/4 delirious. Peppermint tea then helped me. To put it bluntly, the first fart after surgery is absolute heaven Laughing The guy next to me on the ward had his surgery in the morning and I had it afternoon, so he was a little further along in his recovery than I was. About 2am he let rip with a massive one and I cheered and congratulated him. Funny how small things become important. Mine was about 5am and made me very happy!

  • My brother also had two nights in hospital and had a blood drain. I was in one night with no blood drain. Probably worth discussing with the consultant and nurses what to expect in your case exactly. Everyone’s experiences seem similar but different! For me, doing the required 10 laps of the corridor walk the next morning at hospital was fine and the journey home was slightly uncomfortable, but also all ok. 

  • Thanks Paul, your comments on journey home are a bit concerning as my trip is over 100 miles , will also ask about  the blood drain as I have never heard about this before , everyday is a school day with this bloody prostate cancer , hope your now on the mend and all is going well for you Thumbsup

  • Yes I’m in hospital for 2 nights and hadn’t even heard of blood drain before , it also does seem that there is no set in stone outcome from this , a few people have  advised that they had no ill effects whatsoever and had to be reminded to take it easy , others can be really be knocked by it , I guess I have to wait and see which camp I will be in , glad to hear your journey home was ok mate I’m hoping for the same , all the best 

  • For travelling home . Take a pillow and put it on your stomach before the seatbelt . It just gives a bit of padding . Also stop regularly and take a walk as 100 +miles is a long way to sit xx

  • Great tips thank you , I was just looking at your profile, has your husband had his surgery now , if so hope all is going well

  • hi  

    no he was given false information by the specialist nurse which broke our hearts . He is on hormone therapy & had 6 large blasts of RT  on palliative treatment as non curable as there is one lymph node involved and they won’t treat other than the HT .

    He’s coping great now on his palliative treatment plan for as long as it works.  His PSA is currently undetectable . 

    we see a councillor once a month as the specialist knocked the stuffing out of us . He then blatantly lied  what he told us but he forgot he wrote everything down for us . So someday it will bite him back. 

    best wishes & hugs 

    Liz & OH xxx

  • The blood drain was due to there being minor complications with reattaching the plumbing.  During the struggle my abdomen filled up with blood.  It's a rare complication but no harm making you aware that it might happen.  For that first week I had the blood bag on my hip and the catheter bag on my leg and both had to be emptied in the toilet.  It was a long process and hurt a lot if the blood bag pulled on the wound. it also means my manhood lost even more length - that's my excuse and I am sticking to it, lol.

  • So sorry to hear that Liz, I also have had quite a negative experience through this journey with the NHS , I took it to the ombudsman but unbelievable after a long chat with them yesterday it seems because they have so many complaints they can only take on cases where wrongful deaths or similar have occurred, I was speechless listening to her given the issues,lies and incompetence I have faced to date , the lady I spoke to was lovely but her hands were tied, she did though advise that she would look for legal advice after listening to my story which I am still considering just on principle 

    I am now paying for everything including the surgery privately as i have just lost all faith in the system 

    I am so pleased to hear that your OH PSA is now undetectable and wishing you both all the very best for the future 

    Nick x 

  • God you were put through the mill mate , hoping your through the worst of it now and things are on the up ( pardon the pun Blush)