Good evening, just curious here if any of my fellow PC patients have been in the same situation as myself and had 33 fractions of radiotherapy post radical prostatectomy ? Gladly I was given the good news of undetectable PSA back on the 26th of last month and during discussion at my oncologist meeting I stated that I had niggling aches and pains sporadically and in varying joints, muscles etc. He did state that this is associated with the Prostap hormone injection and as I’m undetectable I could stop the course before the 2 year plan. I have no intention of stopping though as they do more good than harm and I’ve only 5 more to get . Hot flushes are brutal at the moment but that increases fatigue due to broken sleep and the warmer weather ( even here in Scotland) exacerbates things a bIt. So just curious really as to how anyone may be experiencing things post Radiotherapy ? We are all different so it’s an interesting topic I find. I keep in touch with fellow patients from my weeks at Ninewells through our WhatsApp group appropriately named The Pelvic Thrusts ! We were originally the Prostate Boys until another good friend made during this time , a woman called Susan who was being treated for rectal cancer , joined the group hence the name change ! The prostate boys were never going to be a successful boy band anyway so Susan did us a favour ! Hopefully that gave you a wee smile , it certainly amused our radiographers and my oncologist ! Best wishes to all ️
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Hi Beefy24 thanks for the chuckle! Very similar point to another post I have just seen. I had 37 sessions (& 3 SABR) and have been on Zoladex for 8 years. Yes I get pains all over - are they caused by RT or HT or would a 76 year old normally get these? I just don’t know. The only time I have felt really bad since my diagnosis, it has always been due to treatment so it’s easy to blame. I know that without treatment I would be dead, so happy to accept the rough with the smooth. Keep on that curative path.
Best wishes, David
Please remember that I am not medically trained and the above are my personal views.
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