Four weeks after RARP. The good, the not so good and some questions.

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Four weeks after the op, and overall I'm feeling pretty good. The catheter is long gone (didn't enjoy that much), no leaking after the first day, and not even wearing pads now, except as a safety measure (long car journey, trip to the cinema etc). The first night after the catheter came out, I got up five times, but that has gradually reduced and now it is once or twice, which is about what it was before the op. I think my determination to work hard on the pelvic floor exercises has paid off there, or maybe I'm just lucky.

My main problem is the opposite of incontinence. I'm having difficulty peeing. The first bit comes out fine, but then I'm having to really push to eek out the remaining urine. It feels like I'm milking an udder! So what might this be? Some kind of narrowing of the urethra? And is is likely to improve, am I stuck with it, or might further intervention be necessary?

The other issue is ED. Basically, nothing is happening down there. To be honest, until about a week ago, I didn't even think about it. But now I am. I'm nowhere near feeling like masturbating yet, but last night I watched a very erotic film, that would normally have stirred something. But no, not so much as a twitch. I haven't yet been told whether or not my op was nerve sparing, and was given no info or help, as I've seen others were, such as tablets or a pump. So what should I assume from this? The nerves were damaged and that's that? That they will deal with that side of things at my post op appointment (still three weeks off)? If there is still hope of improvement, is there anything I should be doing for myself now to help things along? All advice gratefully received!!

So I'm feeling fairly positive about things, with one or two areas of concern. But god, am I glad to be rid of the cancer! And hoping for an all clear from my next PSA in 2 weeks.

Thanks for reading, and all the best, whatever your own situation. 

  • Keep going with the pelvic floor exercises. They help with the small twitches and reactions I have (one sided nerve sparing for me btw). I’m almost 4 months post op and still nothing “usable”, but things have started happening a bit. 

    But… definitely get a vacuum pump. Work like a charm! Wink If you are in the mood, there are ways around the spontaneous erection issue. My brother left his diagnosis a lot later than me and had way more extensive surgery. But even with no nerves left at all, his message to a couple of months ago about pumps etc was “Yep good pervy fun to be had” … so keep the positive feelings, things can definitely work!

  • Thank you. That's cheered me up a bit! did you get your pump from your surgeon? and if so, did they just give it to you or did you have to ask? I'm just surprised there was no mention at all post surgery.