Fatigue and Degeralix

  • 2 replies
  • 114 subscribers
  • 153 views

Hello, hope everyone is doing OK.  I’m posting on behalf of Mike my husband in the hope for reassurance (again) please.

Mike remains totally wiped out since his last hormone injection. He has a bad chest infection and is much better just left with a cough. He can manage a 15 minute walk in the morning but that leaves him wanting to sleep for the afternoon.  He has episodes of dizziness and is due repeat bloods tomorrow as he had low calcium and slightly reduced haemoglobin levels.

The worst aspect is how this is affecting him mentally.  He is very despondent and down, he let me call the MacMillan helpline and he spoke with an advisor in private which did help.  He admitted that he worries about me because I’ve got Parkinson’s and how will I cope.

Did anyone else experience extreme fatigue with Degorelix?

Seeing oncologist for first time in June, terrified it’ll all be bad news again.  Mike was diagnosed in April this year, came as a shock told he had sciatica. PC spread to bones and spine.

 I hope my angst ridden posts don’t bring you all down. I honestly don’t know what we would’ve done without you.

Thank you 

  • Good morning and sorry for the delay in replying. Well done for getting Mike to speak to an advisor but don't forget that they are there for you as well. It can take a little while for the body to get used to the drop in Testosterone and I can't answer your question on Degarelix specifically as my husband was on Prostap but he has suffered from fatigue ever since starting it. It is something we have learnt to live round and in his case he has an afternoon nap which effectively means that we arrange to do things in the mornings and evenings. These drugs can have an effect on other organs in the body which is why he should have regular blood tests and it could be this which is causing some of the problems.

    My husband was concerned about how I would cope without him so we basically put our house in order which assured him that everything was as organised as possible. That has been put to bed and he now just gets on with enjoying life. Your health is an added concern for your husband so I was wondering whether you are able to get help through the Parkinson's charities, at least to look into what they might be able to suggest for longer term?

    The blood tests are your first step with Mike. Don't worry about your meeting with the oncologist as they will look at your husband as a whole and come up with a tailored plan which might include changing the type of injection for one which suits Mike better. There is no one size fits all and it can be trial and error to come up with the best combination which works.

    Let us know how you get on and big hugs.

  • Thank you so much Alwayshope, we really appreciate you taking time so reply.  Your support and kindness are greatly appreciated. Big hug back to you x