Continence

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Good evening people.

I am 5 weeks post prostatectomy and everything I thought was going well has just gone belly up.

i knew there was going to be incontinence following the prostatectomy but thought I had swerved that one. Over the initial two weeks after the removal of the catheter things seemed to improve on a daily basis and  by the end of week two I was dry all night and getting up only once rather than the 6 or seven times prior to the op. I was using only 2or three pads.

Then this week I was back to square one, in fact I now have more of an issue than I ever had. Every time I stand up I am incontinent and I can only go two or three steps before I am incontinent again. It only goes without saying that coughing laughing etc has the same effect. To make matters worse I am now conscious of a strong odour when I change my pads. My wife says I am imagining it but it is real to me. All this despite the fact I am sticking religiously to Mr Squeezy!!!
All this appears to have started after I became constipated  despite efforts to prevent this effort, diet, fluids and laxatives. Could I have damaged something passing a large poo.
Any thought and suggestions readily accepted.
I know there is no avoiding the fact that the operation was done because I had cancer and it was done to prolong even save my life but the thought of this being me for the foreseeable is daunting.

  • Hi  ,

    have you checked with your GP if you have a UTI ( urinary track infection)  as if you think it’s smelling a bit . It’s worth checking . Of call your cancer nurse. 

    I am not medically trained but I doubt you will have damaged anything . But my OH became quite constipated fallowing his RT so it’s porridge every morning as he’s not keen on taking laxatives . 
    again it’s worth checking with your medical team  to ensure your not constipated 

    take care and let us know what your medical team say 

    Best Wishes 

    Liz & OH xx

  • Hi Al985,

    I didn't go down the prostatectomy route so have no experience on that side of things, but your comment about a strong odour makes me wonder if you are drinking enough water even though it does seems counter intuitive.

    I'm sure others with actual experience will be along shortly with more specific replies for you.

    Best Wishes

    Brian

  • Hi Johnam, thanks for the advice. Like everyone else who needs a GP appointment it is a case of being lucky enough to get an appointment on the day or if not booking 3 weeks in advance. That’s just the way it is I’m afraid. As for my cancer nurse I have some major issues with her as she has made no effort what so ever to contact me to to enquire about my progress and when I did contact her for support she was at best indifferent. 
    As for the constipation, porridge it is then,  and I will throw in a few prunes for good measure.

    Al985

  • I hope you feel better and please pursue a GP appt to check for infection . 

    we are the same in Scotland trying to get a GP appt but our GP has informed reception if OH needs an appt he’s to get one . On one occasion she stayed on to see him . So we are lucky 

    you could try a barley based fruit juice as that helps to flush out your kidneys. 

    best wishes 

    Liz & OH xx

  • Hi Al985,

    As recommended below contact your GP, don't be embarrassed, play the Cancer Card to get an appointment.

    Psticks

  • Spoke to a cancer nurse this afternoon about my incontinance. I explained after 2 weeks where I've been very well-controlled In relation to my bladder, everything has gone to pieces. She said that was to be expected, and  i'm not to worry. Easier said said than done, but I do feel a bit more relaxed about it. I need to be sensible, but I've always been impatient.  Whilst i am on here can  somebody give me recommendations in relation to what pad to buy. They all have good things about them, but I just can't seem to get one that is leapproof, odourproof and  can manage a heavy flow of urine and whilst  leaving  my *equipment* dry?

    Al985

  • Hello Alan ( 

    Here's a link that may help;

     RE: Pads and what you need to know 

    Best wishes - Brian.

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  • Can you not call your GP surgery for an emergency appointment. I would think it would be best not to let this go on for too long.

  • Ask if your hospita/surgery has a continence nurse as they will be able to help you and you might, like me, be able to get pads delivered free.