Brother just diagnosed

Hi BG

Very sorry to be reading this I’m new to this also got my diagnostics on new year day so I can’t offer to much knowledge.

However I can see your brother case and mine have a lot in common and you asked if anyone else had the same diagnostics. You said he as not received the biopsy results yet and still giving a treatment plan which includes chemotherapy this as happened to me and I have already received my first round of chemo. In my case it as spread to to my skull and they are concerned it my spread to my brain. So they wanted to move quickly. Hit it hard and fast were her words. You said it is buy is spine so maybe they are worried it will move to his spine.

You also spoke of Second generation drugs could this be the hormone tablets? They gave me NUBEQU which is a second generation treatment?

As for the chemo he is worried about side effects I was the say but decided to go with it. So far they have not been to bad although I have a few however overall the side effects of hormones are worse of course this me and we all react differently. 

Sorry I can’t be of more help.

Ian 

Hi BG, that sounds a much better treatment,  probably the best one to have, and one familiar to a few guys on here, I can understand it's an emotional time, and it's difficult to process everything, but please don't Google, use trusted websites, Macmillan, CRUK, Prostate cancer UK and the NHS ones, when you have all the information about your brothers treatment, please get back, and the gang will be able to help you through it.

Eddie 

Thank you Eddie and I don’t Google I’ve learnt that by listening to everyone on here I only googled the medication . All you advise and reassurance been amazing so thank you so much 

BG

Hi Ian 

thank you for taking the time to send a message it’s really helped and so sorry your on this journey too but what I have learned Ian is this site has helped me so much and I’m not an expert on prostate cancer by no means but being on here I’m learning so much so keep posting it really does help the people on here are amazing no questions are silly everyone here to help each other . You take care of yourself and again thank you .

my brother has had all his results in including bone scan it’s in his pelvis and lymph nodes close to spine so like you think they going to hit it hard .

take care and thank you 

BG 

Just wanted to let you know I am still with you and following your journey,I know non of us were experts before finding ourselves on this rollercoaster but have left it to others who are able to help you better than I am able, do continue to hope as lots can be done Much Love David 

Hi David

such a lovely message thank you so much 

BG

Hi eddie

could I just ask a question please . My brother is getting out in Apalutamide along with his HT. he has come across another drug Abiiraterone  think it’s spelt like that . He was just wondering on looking this one seems better for advanced cancer . Has anyone been on either of these treatments or know what the difference is between them any help would be much appreciated 

thank you

BG

Hi  BG, Apalutamide blocks the interaction between testosterone and cancer cells, Abiraterone stops the body producing testosterone.

I know NHS England doesn't approve Abiraterone as a routine 1st line treatment, but know there are exceptions, as some on here may share, my concern would  be Abiraterone is not seen as an effective treatment after being on Apalutamide, though I  know your brother hasn't been on it long, I'm not qualified to answer, it's something you should ask your team.

 Eddie xx 

Thank you Eddie that explains it so well

BG