Brother just diagnosed

You would need a PSMA scan to be certain, MRI isn’t that sensitive when it comes to the small stuff.

Thank you so much 

BG

Wow.

You are beating me. I thought the 14 I have discovered was setting a record.

There are a lot of us about.

Steve

Hi Bg65 

Find an Oncologist that fits into that portion who believes it is curable and explore this pathway. 

Hope this helps. All of the best.

Dutchie

Hi Dutchie

not sure what you mean , he’s been told by urologist not curable as they think it’s gone into bones still waiting on bone scan . The wait for bone scan is really freaking him out as getting told it is on bones and that’s without the bone scan result to then be told we didn’t know about all your operations bones breaks injuries etc let’s ignore that so his heads every where 

thank you

bg

Hi Dutchie 

I understand what you mean now I’ve read over your post again 

thank you 

bg

Hi bg, a warm "if late," welcome from me, I was diagnosed nearly 3 years ago, T4 N2 M1a/b, i have had 5 bone scans since as they thought it had spread, and every time the results were negative, my latest "lower spine," one came back with the term suggestive, but as like you, fractures, damaged discs, lesions, arthritis and osteoporosis/micro fractures to that area, which oncology knew nothing about, I'm confident of good news, on diagnosis I had cancer in 5 organs and 8 lymph nodes, after treatment, HT and RT, there is no evidence of disease, except in 1 lymph node, which will soon be zapped, and in just the 2 year since my RT, treatments have improved quite a bit, best wishes with your results and treatment.

Eddie xx

Good morning (or evening to you) Munster ,  I picked up your comment to Bg65 and am unclear where you were in your own treatment.  Your bio reads July 24 that 2 mets were found.  Potentially curable, then your PSA went down.  What treatment did you have once the mets were discovered?  I think you told us but I can’t remember.  Hope you are still doing well.  David

Hi David2017 

I only had 3 sessions of SBRT on my C5 and 3 sessions on my T4. The tumours were only picked up once they were 6mm in size by PSMA PET scan.

I originally went on 6 months of HT when I underwent Salvage Radiation on my prostate bed and lymph nodes in 2022. Since then I have not had any additional medication. 

Only time will tell if all the treatments I have had or not had have worked for me.

Kind Regards 

Dutchie

Dutchie (Munster ), many thanks for your reply, that makes complete sense.  I had a PSMA PET which picked up a met in my sternum.  Originally my oncologist put me on Enzalutamide but I got a second opinion and have just had planning for 3 x SABR in mid Feb.  Both oncologists however insist I am not curable and it will return!  For me it feels right to try and kill the bug*ers as we locate them.  David