Brother just diagnosed

Thank you Eddie for your reply makes me feel so much better it’s all just up in the air at moment waiting for the bone scan results so he’s quite anxious . I’ve showed him your post and he feels bit better he just keeps thinking if it’s in bones there’s no hope but I know reading all these posts that there is 

once again thank you 

bg 

Hi bg, you are welcome, and know how awful the waiting can be, I also know there's no point telling you not to worry, as why wouldn't you, but LIVING with cancer does get easier, I was in healthcare for 15 years with 5 being in cancer care, and only retired 4 years ago and treatments have progressed enormously since then, and along with many new ones, just being rolled out, and others in the pipeline, "I like studying," as many have said, there are many tools in the toolbox, 

Eddie xx

Hi Eddie once again thank you for being so reassuring to be able to come in here has been such a help talking to others who are going through the same . It’s just early days for us and we can not get our head around it all . My brother just struggling with his urologist saying no cure and treatment will be hormone therapy and then chemo , he just doesn’t understand why it’s chemo if they don’t know biopsy results yet . I’ve explained to him that it’s the oncologist who will decide his treatment , am I right in thinking that ? Sorry if I’m asking to many questions I feel like I’m always on here asking the same thing I hope I am not repeating myself to much . I just know that if bone scan comes back it’s in his bones it’s gonna knock him for six he thinks that’s the end he just can’t take in yet how good the treatment is even if in bones but I’m sure with time and getting his final diagnosis he will get ready to battle this . is there any others on here who are at same stage as brother who are going through this with same diagnosis ?

BG

Hello Bg65 

Me again .I hope Eddie doesn't mind me jumping in here. I started my journey over 3 years ago - initial PSA 182 and a T3a. I have a "shadow" on my pelvis which my oncologist said - let's zap it with RT anyway and you should be fine.

What I am trying to say is we are all different and different hospitals deal with each case on it's merits and the expertise of the staff there. (I should say I am very lucky and my hospital is Christies a cancer specialist hospital).

Once the bone scan comes back your brothers team will have an MDT meeting and his treatment path will be discussed and it will be up to oncology to take over. It's possible his bone scan is back and they are just waiting for the weekly MDT meeting to discuss his case.

There's no problem in ringing them, telling them the anxiety is boiling over and have they  got the results and when is the MDT meeting?

I hope this helps.

Best wishes - Brian.

Thank you Brian that has helped so much I will speak to my brother about ringing up 

really appreciate so much the constant help and reassurance from yourself and everyone else on here 

thank you 

BG

Hello Bg65 

I have just noticed your other post - my friend "latchbrook" has replied to it (I was about to reply myself as I work on that group too!!)

If I can do anything for you give me a shout please - I hope you are OK.

Best wishes - Brian.

Thank you Brian just feel so anxious about everything with my brother then this happens but I need to just try calm down and hope for the best 

tjank you

BG

Good evening Bg65, my husband was diagnosed last March,  he has extensive bone mets but was put on hormone therapy straight away, he has had chemotherapy which he was lucky and it was manageable, he didn't have many problems.  He is now on 3 monthly hormone injection and darolutamide which at the moment are working really well. Please read my bio it will show you how quick the psa can drop.

I understand your worries and being frightened for him we lost our grandson to luekimia 14 years ago when he was seven and it is so hard not to worry every day.

Take care of yourself as well as your brother

All the best Sheena 

Hi BG, and sorry for the late reply, but thank you #Millibob, for being there, as Brian and you have said, your treatment is determined by oncology, but you also have a say in it, and I would have though it a little early for for the bone scan and biopsy results and subsequent MDT meeting to have happened, as around 2 weeks is the norm, and listen to your oncologist on all matters cancer, they are the experts, and you should have a cancer nurse specialist CNS, who is your best, and easiest way to contact oncology and your MDT, I'm sorry I can't help on the chemo question as it's too toxic for my heart, and I wold like to offer my best wishes with your own referral, take care my friend

Eddie xx 

Thank you sheena

just read your Bio your husband is doing so well and it’s so encouraging when wonderful people like yourself take the time to share your journeys and I truly thank you

BG