I have been on Prostap now since late September 2023 and will be seeing my consultant next week after 20 fractions of RT back in late July / early August.
I am due for my next 3 month implant today which will take me to 15th January before the next one. I am hoping that my consultant will say that this one today will have been my last as it is my records that I was to be on HT for six months from the end of RT. Unfortunately I don't know in advance of the consultation what my current PSA level is as the won't tell me over the phone but the last one recorded was in April at 0.53ug/L.
My question to those with knowledge and experience is. How long (on average) should I expect before I can at least to feel a bit more like a man?
Rod
Hi Osca2023
I can't comment specifically on Prostap, but I finished my RT October 23 when I stopped having to take Bicalutamide tablets & was also on Decapeptyl for 9 months (so 3 x 3 monthly injections) & had my final injection last December.
It was about 4 months after the last injection that I started having erections again & within another month my libido had returned as well & the shrinkage was no more. Only thing is that I now have a dry ejaculation (which I understand can be caused by the RT - time will tell if that changes) but still very similar sensations.
Hope that is of help
Best Wishes
Brian
Thank you Brian, that is very encouraging news.
As you will know if you've followed me through my journey I have had a very uneventful and trouble free time but the side effects of the HT are beginning to get to me a bit. Luckily for me I have the most understanding wife (54th anniversary next week) who supports me wonderfully.
I am just hoping that my consultant is happy with me coming off the HT asap.
Rod
I had prostrap for a total of 9 months 6 months before RT and 3 months after RT. As a rule of thumb my Oncologist told me to expect to have some of the side effects for a further 9 months - though they will lessen in severity before that. For me everything was back to normal within that time.
Thanks freefaller your comments are much appreciated, I hope I will be in a similar situation.
Hi
I was on Prostap for 2 years, I was told it would take 2 years to get out of my system. Reckon it was, although I don't believe I'm back to where I was pre PC - I am older though!
Regards
Stuart
Hi Scampidoodle (Stuart),
Thanks for your reply, Having read through your profile I see that I was lucky to have started my PC journey from a slightly better point than you.
My journey through the RT was very smooth with very little side effects although as I say above the HT which I have been on for twelve months (had my last implant yesterday so will be on it for a minimum of fifteen months) is becoming a bit trying.
Dare I be cheeky and ask how we vary in age, I'm 76 next month.
Regards,
Rod
Hi Rod,
I was Prostap , had my last one in June and around October I started to notice side effects were not as severe, then in November it got to the afternoon and I said to myself ‘ I’ve not had a hot flush ‘ which was brilliant, if I remember correctly I had a little drink in celebration. If you’re the same , by February, March you could be clear …
good luck best wishes
Tony
Hi Rod
I was diagnosed when I was nearly 64 - I will be 69 in a months time.
RT was, for me, pretty straightforward. The only problem I has was when I ignored the dietary advice at Christmas lunch 2019.
Regards
Stuart
I have seen my Oro-Oncology Clinical Nurse Specialist today who reports that my last PSA test figure was un-detectable and that all other blood test results were normal.
It was also agreed that my Prostap implant of last Wednesday would be my last. Hooray!
I now just hope the future PSA tests figures remain as low except perhaps a little 'bounce' as the HT ends. Then some slow return to normality in the spring of 2025 which will be just two years from the start of this journey.
I have updated my profile to reflect this consultation and correct a few wrong dates that had crept into it.
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