Nothing is working ,so scared

We asked for any trails and they said there's nothing suitable due to health bone marrow can't be done just blood transfusions when needed 

Shar no maggies near I'm afraid 

No nothing , do have 2 friends I talk too but don't like to burden them all the time , not fair on them , 

Hi Tina.

Do you want to talk to someone? 

I take it that you have also asked about immunotherapy and radium treatments.

Yes been refused 

Hi Tina.

I think this is something that Brian, our Community Champion, may come back to you on.

Hello Alwayshope and Tina 22  Yes - I am working with the staff to see if I can get some extra help - bear with me. I am out this afternoon on a medical appointment myself but the information has been passed up the chain of command.

Kind Regards - Brian.

Hi Tina,

I'm not very knowledgable about this area (Yet ) But have been looking at immunotherapy quite a bit and what I find interesting is that it can be used in the latter stages of PC in a different way to if you have used it before., As you probably know Immunotherapy helps the immune system recognise and attack cancer cells. I'm not completely sure of the concept, but I think as you work your way through treatments your cancer cells become damaged and mutate and your initial profile can change to a completely different cancer profile and you can be left with a different cancer cell structure than when first diagnosed. Normally you would have (if at all) a genetic profile done at the start. A "germline" test that could be done through a swab of the mouth lining or maybe taken from the initial biopsy. With this result it will give a clue to what medication is suitable and how it will work better in fighting your cancer. What you really need to have later, after all the treatment and when you have come to a point where it is failing is a "somatic" genetic profile test that is done through a blood test. This looks at the genetics of the cancer that lives NOW after all the mutations from treatment. It's no good relying on what your cancer was at the start because thats old news. With this new information there is a (slim?) possibility that a medication ( that may of been used earlier and failed or a completely different medication will kickstart your immune system to start fighting the cancer again. 

Now, I know that sounds a bit pie in the sky and I'm not medical, but the general idea sounds worthy to me... Where there is life there is hope. Personally I'm prepared to turn every stone to get answers and more time and will pursue every possibility going and ask those questions. You could have that discussion with your consultant and ask for a "somatic" blood test to look to the genetics of the cancer now and how it's changed . Nothing is lost by asking. 

keep strong 

L x

* I've just looked back at the answers and seen you have been refused. I'm really sorry about that.

Hi Tina 22 

I'm Steph from the Community team, I hope you don't mind me reaching out here to offer some additional support from Macmillan. 

I am so sorry to read about your husband's cancer and everything you're going through together. I hope we can help you find the support that works for you both. 

The Online Community and our Support Line are here for you as long as you need us. Many of our members say how much it has helped to be able to speak to people in similar circumstances, or to talk everything through with an expert. I hope it helps to be among people who understand and care about what you're going through.

I would also really encourage you to contact the Macmillan Support Line. They are here to support you as well as your husband and can provide emotional support in addition to helping with money and cancer, for example.

Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat.

We also have lots of information here to help support you when your loved one has cancer.

Please do let us know if you have any questions or need further support with anything at all. I hope the Community helps to show you that you are not alone.

Good Evening Tina 22  - I hope being on the forum with us is helping your situation.

I see Steph from the Community Team has posted some advice and I would strongly advise you to give the helpline a ring on 0808 808 00 00 (8am to 8pm 7 days)

Best wishes - Brian.