Just wanted to thank you ALL for being on here, bravely sharing your experiences and even responding to my posts. I can sometimes feel a bit separated, lonely and blocked in this world so having somewhere to go to that you trust is a godsend.
A lot of the time I feel pretty frazzled or overwhelmed and exhausted with a fuzzy brain and tentative. I still haven’t learnt how to express myself as fully as I’d like on this forum but do get a lot from others who post even when not directly related to my posts. Hopefully people will get something from mine too though I know it’s not a gimme.
I also try to remain open and chatty at the cancer clinics that I have to visit and glean as much useful information as I can from people who are going through similar things to me. I thank them too. Truly.
In the meantime, this week, I completed my 28 day course of BICALUTAMIDE 50mg and had my first Prostap 11.25 mg (next one in March). Other pre-existing conditions mean it’s not always so easy to be so clear about things but you guys helped give me some confidence to ask the doctor for specific help. EG. the Tamsulosin 50 mg, Mirabegron 400mcg + Lactulose plus three days of Loperamide 2mg that DEFINITELY helped me got to the loo more for No.1s & No.2s.
Am now a bit in limbo as my next appointment with Oncology/Urology is at the end of January and a bit nervous of the next step ie. Possibly External Radio Beam Therapy. I think that’s what’s next. Just praying my PSA levels etc go right down and stay down 
.
Thanks again
longtom
Hello longtom It's no problem - that's why I am here. Exactly 2 years ago I was given my cancer diagnosis - no choice of treatment - some hormone tablets and an injection and told to "get on with it".
A nice MacMillan nurse directed me to this Community - I didn't join right away but when I did the people here (Some who still are here) put me right. They told me all about my diagnosis, my treatment, what to expect and to ensure I exercised - we had a laugh on the way, but the information was brilliant and I was able to understand where I was and where I was going.
I don't want anybody to have a diagnosis and not understand it and to travel the journey alone or with just their family for help. This is OUR Community and WE can help each other - and you know it works. That's why I am still here.
Oh and congratulations on having your post featured on the home page so everyone can read it - it's amazing when someone sticks a positive post up so thank you from us all.
best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
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