I finished my RT at the start of December 2022, about a year ago.
Since then I've got almost back to normal in what i do. All that remain are ED, fatigue and bowel & bladder issues. I'll leave the ED out of this post! The bladder I can cope with, still going 4 times a night, more than before they told me I had this cancer!!
So as I've got back to a new normal, 2024 is my year for travel. I've a number of things booked which will mean no access to toilets in some places. One of the places I'm going is Svalbard, staying in a remote miners cabin with no tap water, an outside loo again no flush. What concerns me is not that, its that we are going on a 6 hour snowmobile trek and next day same but husky sled. My issue is that i cant trust my bowels, i often get wet wind! Its mucus and my actual movements are all over the place. Often when I need to go....I need to go!!!! Consensus is that the RT burnt my passage and has caused these issues, I don't want to not be able to do things so I'm wondering if anyone else gets this?
More importantly, how do you live with this part? I've tried watching what i eat. no caffeine, very little alcohol, I make myself drink a litre of water a day or i bung up! Does Imodium help?
There are lots of other trips and places to go, I just want to maintain a normal life!
