Do you have a Macmillan Nurse at your hospital? Also you should be able to get hold of most of the stuff on your NHS App if you live in England.
Hi Freefaller the only info i get on my NHS app is GP related only. There used to be a macmillan hub at urology hospital but it has moved temporarily. As my other hospitals are larger i would think they would. Because of my health situation i use 4 hospitals, take care, Eddie
Hello Eddie
Yes it's a difficult one to be sure as I can confirm being under 3 hospital trusts and the GP.
The answer is going to be whatever information you wish to share with the MacMillan staff - such as diagnosis or treatment plans is to copy the documentation and take a copy with you for them.
I know the system SHOULD send copy documentation from Urology and Oncology to your GP and it SHOULD appear under "documents" on your NHS App.- but to use this facility I would think you need FULL access to your NHS records on the App.
It took me a visit to see our G P practice manager before I got "FULL" access - I had what they called full access but it wasn't.
Best of luck - Brian.
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Wow - that's a record you want to keep to yourself!!
At least you now have access to your records and your G P has been very good in helping with this.
I hope your visit was nothing too urgent and you are Ok.
Best wishes - Brian.
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