Ductal Adeno Carcinoma

I’m so sorry to read this Louli. Doctors and others forget some aggressive prostate cancers don’t express much in the way of PSA. Sending love and condolences.

Hi Louli

So so sorry to hear this. It sounds like you were treated very badly by the health authorities, and I can only imagine the frustration and anger you must be feeling. 

Your advice is very helpful though, and although I know you must be going through a terrible time right now, please know that others with DAC can learn from you. 

Paul

Hi Louli,

I’m sooo sorry to hear of your husbands passing. I have read many of your posts.

I’ve always remained in the shadows since initially posting on this site over year and half ago wanting support as my husband was going through staging.

But I’m so sure you were one of the first people that  responded to me in those rapid illegible rants I posted.

Once WE got the results I fell apart it’s taken me until now to post on here. Although in the night when I can’t sleep I creep on here to see if someone has found  some miracle cure for this shitty form of cancer.

Lots and lots of times I have seen your responses to others and your positivity.

One day I will be you and I hope I can handle the loss of the love of my life like you.

Cry hard and long , Scream out his name, talk about him endlessly and always , because they were are more than what took and will take them away from us.

Again I am sooooo sorry for your loss. Xxxxxxx

Dear Louli 

I am so sorry to hear your awful news. My deepest sympathy. 

Dutchie

Dear Louli ,

I'm so sorry to hear of your husband's passing. You have been a great help to some on here and I hope that you will come back when the time is right for you.

Thank you so much… I’m broken right now and yet I am again so grateful for the kindness and support of everyone here. 

I wondered if I should post the news but I had to because it’s DAC. It’s real and definitely aggressive and we need to fight for better treatment opportunities for stage 4 too. I am still waiting on the liver biopsies they took. His oncologist didn’t even come and see him in the ward despite the fact he had a clinic 2 floors down. I am going to ask for the full pathology report next week. I need to know the facts. They said it was DAC in the liver but I will keep you posted. 

love to all of you xx

Thank you Northerngrit….. you are a darling and that’s sound advice for this rollercoaster of grief is which is a shocking feeling. I loved my darling boy with all my heart and I had the privilege of caring from him at home and I loved him through every minute. 
We had our favourite music and watched all his favourite tv programmes together from bed between sleeps and he was so peaceful and pain free in the end. It was really beautiful and loving so I am holding on to that. 

sending you much love,

Louli xx

Awe Seamus thank you… it’s been a pleasure and even now I love this group… I’ve got so much to say but not the same energy at the moment.

So much love to you my friend,

Louli

Thank you so much.. yes I do feel a variety of feelings right now and none of them good… everything hurts …even his shirts in the wardrobe have a hold over me. It was so sudden in the end but I would have my life with him all over again if I could. We were so in love right to the end!

love,

Louli xx

My post in the general PC page is under review. I’ve never had that before. If someone here has found my post about how my husband passed and what I felt to be the lack of potential treatment hurtful or too difficult I am so sorry but these are my lived experience sadly and I’m so sorry the news is difficult with DAC. It is so rare and we must be vigilant. 

heartfelt and sincere apologies… Louli xx