Degrelex injection no other treatment

So sorry to hear your story its very hard and you both need someone to talk to.  I do hope you manage to speak to someone soon.

They can give medication to ease hot flushes - is this the medication he was on that he had the bad side effects on?  I am afraid I can't remember the name of it as I never had to take it but others on here have had it.  Other than that its just the same advice as given to menopausal women - as that is what HT does is bring on the symptoms of menopause - so wear layers so that they can be taken off when you get a hot flush, drink plenty of fluid blankets and sheets are better than a heavy duvet as he can remove them individually to get comfortable.  running cold water over his wrists when hot flushes occur and trying those cooling mist sprays you can buy. 

I am surprised you cannot ask for a face to face talk with his Macmillan Nurse.  I would ring and ask if there is a medical professional attached to either urology or oncology who you can talk to face to face.  It may also be worth asking at your GP surgery.  In the meantime you can call Prostate Cancer UK on freephone number 0800 074 8383 where the specialist prostate cancer nurses are brilliant and may be able to point you in the right direction - my wife and i made many calls to them.  Their phone line is open Mon, Tue, Thur, Fri between 9am and 6pm and on Wednesdays between 10am and 8pm.  I also had great support from Tenovus who rang us at least every month to find out how we were coping and continued to do so for 2 years after my treatment. Macmillan offer a similar call line or you can use the "Ask an Expert" section on here.  We also had great times - and still do at our local Maggie's cancer Centre.  Have a look to see if there is one near to you and go along they usually have a prostate cancer group who meet regularly.  They also offer fantastic professional advice and courses from benefits to relaxation, getting fit after treatment - and my wife loves helping in the garden in the centre and we get some lovely fresh vegetables to take home from there.  They have been invaluable to my wife and I.  You can of course telephone them for help and advice.  You may also find by doing a google search other prostate cancer charities in your local area that may offer services or prostate cancer groups who have meetings for sufferers and their families.

It is very hard to get more frequent PSA tests - I know I asked myself and 3 monthly is normally the most frequent. 

I hope you manage to get to see and talk to someone soon.

All the best

I'm sorry for what the two of you are going through.

Because of his young age, but limited access to treatments due to other conditions, you might want to think about asking for a referral to one of the main cancer centres (such as Royal Marsden, UCLH, etc) for a second opinion on any possible treatments. This might also make any suitable trials accessible.

Fatigue is most effectively countered by exercise, and in some areas there are exercise programs for cancer patients. Actually, exercise should be considered as mandatory for anyone on hormone therapy, as it helps to counter many of the side effects.