Advanced prostate cancer

Hello TJP,

im so sorry you are going through this. My husband was diagnosed with stage 4 18 months ago with distant mets. 
he has done really well on Prostap injections and Arbiterone and PSA is around the same as your husbands. 
Try not to focus on PSA too much when it is as low as that. Advanced Prostate Cancer is very treatable with a few bumps in the road along the way. Lots of new drugs coming out all the time.

lots of guys on here at stage 4 for many years. Every time my husband gets a new symptom or something changes I panic a bit. That’s only natural but honestly, read the stories here and get support for you too. Call Macmillan support too they are great!

sending you much love,

Louli xxxx

Thankyou so much for replying Louli you have made me feel so much better ….. something like this is all I needed to hear …..THANKYOU x

Hi

OI’m what they call pre diabetes, I have a reading of 6 plus sometimes past 10 it’s like a yo-yo, my PSA has gone to 8.6 I’m on enzalutamide, my team are monitoring in case there’s a large jump, but it’s holding steady, so your team are doing everything right covering all bases, whatever they find will be treated one way or another.

Stay safe

Joe

You are so welcome.. there are many ups and downs but thankfully lots of treatments especially at stage 4!

much love Louli xx

Thankyou so much for replying good luck with your treatment

Hi, I have recently been diagnosed. T3 A and B N1 M0 Gleason 9.

Presume Radiotherapy along with LHRH is still the best option (advised by specialist) all a bit scary tbh. Anyone any ideas how you feel going through the radiotherapy (think i've got 7 weeks of daily treatment coming up)

Good Morning Richmond

Ah there you go - I am on day 12 of 20 today. Days 1 - 9 were fine but now me and the toilet are best friends (for number 1's and 2's) and over the weekend fatigue has set in and I am feeling a little  tired. However the treatment is painless and for me the hospital is just over a mile away so travel isn't an issue.

The need to have an enema prior to each visit may mean travelling each day to the hospital and having it there - I am lucky I do mine at home - do what's needed - and travel in with an empty bowel.

Anything else feel free to ask.

Good Luck with your treatment - Brian.

I had no problems whatsoever going through the RT.  Only problem was finding accommodation near the cancer centre which was 3 hours drive away from home.  I found a fantastic cancer self help centre nearer the hospital where I stayed in a self catering log cabin and - had I wanted they would also have transport to and from the hospital twice a day - I chose not to as mostly stayed in the city visiting friends or going to events. If you told the hospital you were staying at the centre then they would organise your RT to coincide with the transport.  I made a donation to them for what a travel lodge would have cost me for the 4 weeks plus extra as a few times we joined the staff and other patients in the house - where there were en suite rooms, for a meal or two. They would provide all meals including a packed lunch if you wanted.  The hospital were brilliant and organised the times of my RT early so that on the Friday I could get away to travel home and then a little later on the Monday so I could go straight there when traveling back. Luckily the centre had a gym and swimming pool so I kept on with my fitness regime all the way through.  Half way through I did have one night where I spent all night passing urine - but after that nothing with either bowel or bladder.  You must tell the radiologist if you notice any difference in your bladder and bowel movements straight away and they will ensure that something is prescribed to help you.  The preparation is far more bother than the actual RT - which is painless and actually takes minutes.  Some of the men followed a particular diet and didn't use an enema for their RT whilst some of us used an enema for the first 2 weeks - I think it depended on which consultant you were with.  So long as you listen to your body and tell the radiotherapists when you notice a change in your habits and get medication when needed its really not bad.  Many of the men there with me continued to work part time and the hospital also organised RT in the evenings up until 9pm for those who wanted to continue to work as normal.

All the best

joeven said:

OI’m what they call pre diabetes, I have a reading of 6 plus sometimes past 10 it’s like a yo-yo, my

Joe, hormone therapy does push men towards diabetes. You could ask your GP and oncologist if you can go on to Metformin, an anti-diabetic drug. This might help avoid Metabolic Syndrome, where abdominal fat build up causes raised blood pressure, blood glucose, and cholesterol levels. Also, get your cholesterol levels checked and discuss taking a statin with your GP and oncologist too. Eating the right things and not the wrong things is important too, as is exercise. Indeed, exercise improves the body's response to insulin for about 16 hours, which is similar effect to Metformin.

Hi Andy

Ive been on metformin for two years plus, I also take flusatin for cholesterol, I used to excersize lots before covid, it’s just now and then at the moment, I did some swimming, but the kids fill the pool not my thing.

I have other things I take meds for, still they kept me going although I’m a heck of a lot slower, and fatigue is a devil.

stay safe 

Joe