57 Year Old diagnosed with Prostate Cancer Gleason Group Level 2 - looking for advice

Former Member
Former Member
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I'm 57 and have just been diagnosed with Prostate Cancer, Gleason Group Level 2. Out of the 20 biopsies taken, 3 were cancerous

It is confined to my prostate and I've been offered either surgery or radiotherapy and my head is in a whirl as no idea which is the best option. I've seen the surgeon (who certainly did not have the best bedside manner!) and he's explained the pro's / con's of that. I'm waiting for an appointment with the Radiotherapist to go through the pro's / con's of that - the nurse said that sometimes having a choice is not a good thing and she's definitley right!

Everyone I've spoken to has a story or knows someone that's been through it but I'd rather talk to people who are in the same situation as me directly hence reaching out on here

I'd be really keen to speak to / hear from someone of a similar age to me, most people I've spoken with have been a lot older and therefore, no disrespect, the potential side effects are maybe not as important

I lost my dad to prostate cancer so that is also heavily on my mind 

  • My only advice, I was diagnosed at 50 with prostate cancer, if you were unhappy with the surgeon, ask to see someone else, as for surgery v radiotherapy I was told if I had radiotherapy then removal of the prostate would be difficult if not impossible after radiotherapy as my surgeon said radiotherapy basically coats the prostate in “superglue” making an operation to remove it very difficult and in many cases not possible. Also be aware radiotherapy can have lasting affects on the bowel, I’ve now developed radiation cystic of the bladder 5 years on. Basically have a think and get some advice that suits you, but a second opinion is always a good option. 

  • Former Member
    Former Member

    Like you I was diagnosed at 57, Gleason 3+4 = 7.  Prostate vol. 30ml, density 0.17, PSA 5.2.  At biopsy, 10 cores involved, 25% positive.  My father was diagnosed with advanced metastatic PC at 84 so, also like you, I had a lot to think about.  For me, 18 months of AS followed by RT was the right way to go.  I wrote a looong post about it on here a couple of months ago.  If you can find it, hopefully it'll give you some reassurance.

  • Hi GazH

    similar story here, I am 55 and was diagnosed T2 Gleason 3+4 and PSA was 6.9.

    after several conversations about the pros and cons of Radio or removal I went down the removal route, basically I wanted it out and reduce the risk of any return. The op was 5 weeks ago and yes I do get a small amount of leakage and am currently ED.

    Radio can cause more issues with bowel problems and like someone else has mentioned if it comes back then surgery is almost not an option.

    good luck in which every way you chose to go 

    Scubasi

  • Hi Gaz - it’s some time on from your original post, so may have now made your decision. If not, maybe my experience will help.

    Details are on my profile but, to summarise, my diagnosis 18 months ago was very similar to yours. I opted for surgery, which I had 14 months ago, and I have absolutely no regrets. I am fully continent, sexual function is fine with the help of the blue pill, and my first year of PSA monitoring has been absolutely fine - 0.03 at the last check.

    If I had my time again I would do exactly the same.

    Good luck.

    HH

  • Hi Gaz, I don’t know if this will help you at all, but my late father had prostate cancer some 10 years ago now and he was offered surgery to remove the entire prostate which both he and his second wife accepted. However, the surgeon OF HIS OWN VOLITION left a small amount of gland in place so he could enjoy a healthy sex life. This was entirely against the couples wishes and, as can be expected, the cancer grew back , eventually taking his life a couple of weeks ago. 
    So, I know this thread is over 12 months old, but if you are still looking for advice then I would say have the whole prostate removed and bugger the consequences as life is still worth living without a sex life. 

    On an aside, I, was born in September 1966 so I’m either 56 or 57 (you do the maths) and I too have terminal cancer (primary brain tumour) but since my diagnosis over ten years ago, I have lost all desire for sec inasmuch as my wife and I have separate rooms, which is a pity. 

    Gaz, I hope that you’ve made the right chance in your quandary. 

    Best of luck,

    Stu  

    Stu B