PSA undetectable but symptoms tell a different story.

Louli,

Sorry to hear the news.  I know they always go on about the PSA levels but your husband shows there's something wrong.

I hope someone knows more than me and can assist you.  

Best regards to both of you.

Hello louli

If he’s doing well, then scans are just precautionary, you have to push for them. The doctors can help with a few things, I was never out of the doctors after my chemo etc, they sent me for X-rays which can be done within days.
Prostap does give joint ache, I can vouch to that. I had rectal bleeding ( not all the time ) a few years after radiotherapy a colonoscopy seemed to stop it. The breathlessness is also part of the treatments, six years on I still suffer with them, there not nice along with the hot flushes.

Hope he gets some relief. I know it’s hard, I took some painkillers this morning, my wife commentated on it as I only take them when I’m in a bit of pain, the poor girl started crying, but a few hugs later although still worried did the trick. So I know what your going through.

Stay safe

Joe

Thank you so much for your kindness Stevecam. 
I read your message when I was at work but couldn’t reply at that time. 
it gives me such comfort to know someone is there willing things to be ok for us. 

Sending you much love…

Louli x

Hi Joeven,

thank you so much for your honest sharing of your  symptoms. I had no idea that Prostap causes joint pain or that other folk have rectal bleeding too from time to time. It has helped me greatly to know that! You have done more than the CNS or the GP has done to alleviate our fears and anxiety. 

I can’t help but worry and I’m very like your wife Joe, I’m in bits at the least wee thing right now. My  adorable mum passed away suddenly a couple of months ago and I’m easily upset right now too which doesn’t help. However, the good news is that I start counselling in the morning so hopefully that will help. 

Thanks for everything, I will keep you posted for sure.

Wishing you and your good lady many blessings and much love….

Louli x

Hi Louli,

I’ve been on Prostap for nearly a year now and it’s given me a pain in my right knee. Never had it before. My local GP sent me for an X-ray but nothing major came from it. He put it down to the onset of arthritis, I put it down to Prostap.

Tyler

Louli,

The good thing about this forum is we are all there for eachother.

I think I've accepted state of what the government has done regards the NHS.    Is a shame other people can't, as I wouldn't wish that for my growing children.

I have to remember I HAVE PAID OUT OF MY MONEY TO THIS NHS.

I won't be around to claim my state pension I've paid into and that money will be syphoned away....

Which can make it bit frustrating when If I call oncology and have them pass me GP, then gp mess me about then phone 111, then to and fro....

I've paid in, I'd like believe I'm looked after????I don't feel that, I don't have much money and can't pay again to go private....

People say don't look on the internet????but for me, it's been the only form of help I get regarding making a decision on treatment, help with side effects, hope.

Not sure the best easiest happiest way through, for me due to the illness, the standard of care, I'm thinking shorter period and happier to appreciate time left?

But this is today, and things change......

Maybe somebody will find the cure and all the pharmaceutical companies who specialise in expensive cancer life prolonging medications will go out of business......sounds likely?

Hi Troxly,

Yes I know exactly what you mean. It’s the same in nhs all over. It’s frightening and we are agreed on pharmaceutical companies. 
in the 80s there was a giant pharma company in the states who were struck off for selling a treatment for lung cancer while at the same time owning a cigarette company in China. 
I wish I could remember their name……

soo soo glad for this group!!

sending you much love,

Loul,