Prostate Cancer and Follicular Lymphoma

Hi Phocused,

I am so glad you opted for treatment! I didn’t want to push you towards that in my last post but I honestly feel relief. It’s a good thing to have two MDTs because there are plenty of people on the case for you and you are getting something done!

My best friend passed away last year but she had three types of cancer with no treatment offered for any of them apart from a successful surgical removal of one small sarcoma in her parotid gland. I often wonder if Years of Active surveillance for her F Lymphoma was the best choice. She was 58yrs and during Covid had real difficulty getting seen by anyone which I’m sure contributed to her decline.

You are both totally different as I’m sure she had a genetic component for cancer and I’m not saying anything other than you’ve been offered treatment for both of your conditions and you have an abundance of drs falling over themselves to help you.  I’m sure you will do great! My husband has stage 4 PC diagnosed 10 months ago at Stage 4. His PSA has gone from 44 to -0.1 in a short space of time with hormone treatment. Thousands of men all over the world are finding out it’s so treatable even at stage 4 that I’m expecting years with him! 

Sending you many kind wishes and following. 

Louli x

Hi Ulls, thanks for the support, I'll check out the incurable site. I guess like the chemo, its going to be a lot about trial and error as everyone if different, but good to get a view.

cheers

P

Hi Freefaller,

Thanks for the guidance all helps to get some ideas of what to expect. I'm fortunate to work from home and I have an employer who is pretty understanding, they dont grumble about appointments, or disappearing if feeling unwell etc, so should be ok. To be honest I was off for 7 - 8 months when I was off with Chemo, so shouldnt be an issue. 

Travel can be a bugger for me however, our town is gridlocked most of the time and at peak time its a standstill, so depending on which hospital I end up being transferred to could make some decisions for me.

Hopefully I'll know more when I see the oncologist for the first time.

thanks again

p.

Hi Louli,

So sorry to hear about your best friend, 58 is no age at all, especially with what's going on with your hubby, I cant begin to think what your both going through. Here's to years of health and happiness to both of you.

Sounds like the DR's are doing all the right things for your hubby, thats a big drop in PSA, long may it last.

Thinking of you both

P.

Hi everyone, hope things are good as they can be and the weather isnt making things to bad for you.

Quick question on Bicalutamide. I started treatment on friday 8th july and have been experiencing bouts of feeling very cold, despite the extreme heat, anyone else have this? 

I've had a number of other side effects, but this is by far the most uncomfortable, like a cold fever from Flu. Tested for covid etc, but negative there and it only comes and goes. Have a GP appointment tomorrow, but wondered if anyone else experienced it.

wishing you all well

P