Prostate Cancer and Follicular Lymphoma

Hi Phocused, and Welcome medium risk is a good result, best wait till after your meeting, just write down the question you want answers to and take some one with you, two sets of ears are better than one, a bit more details and I'm sure you'll get the response your looking for.

By answering your post it will go back to the top, All the best Ulls 

Hi Phocused,

You head must be spinning to have taken PC following treatment for follicular lymphoma. What treatment did they give you for your lymphoma? 

It is as you say difficult to know what to do with Lymphoma. I’m not a fan of watchful waiting with second cancers to FLymphoma. But I’m not an Oncologist. I think it’s really important that both your Urologist and your Haematologist have a meeting to discuss your case. It’s very different having both conditions together. It might be something you could request. I would certainly inform your haematologist if the second cancer as they might want to see you.

keep us posted Phocused,

Louli

Hi Ulls, thanks for the kind welcome and the supportive response, much appreciated. The wife is coming along to the next meeting, memory like an elephant :-) I've also pulled together a list of questions to take along as well. See how it goes.

Rgds P.

Hi Louli, thanks for your supportive response, very nice of you.  

I had watchful waiting when first diagnosed with LF, only lasted about 3 years and I had to commence treatment, almost 3 years of it :-D 

I've pinged the Haematologist and asked some questions, awaiting a response. My main concern is infection, the NHL reducing my ability to fight things off may influence the risks against a particular treatment or other. Look at the furore with Covid and people with blood cancer, I still wear a mask now when I go out. 

My next meeting with the Urologist is tomorrow o hopefully more information will be forthcoming then.

thanks again

P.

Hi Phocused, I take my wife to all the meetings for the same reason, not that I could stop her.

All the best Ulls 

Seems a wise move, in many ways ;-) lol

Quick update following my 2nd meeting last night. 

Confirmed that my gleeson score is 3+4=7 which I take to be better than it could have been and my staging is T1B so also not as bad as it could be. 

I'm leaning towards Active monitoring at the moment, but I have another appointment with the consultant on Saturday as he wanted to speak to my Haematologist before we make any real decisions.

 Thanks for the support

P.

Hi P, nice to see your happy with your results so far, I hope Saturday goes smoothly for you.

All the best Ulls 

Not sure happy is the word Ulls, but its clear from some of the storys on here and other sites, that there are people in a lot worse positions than me, thankful probably covers it better.

Thanks for the well wishes for Saturday, I have everything crossed :-) 

P.

Hi everyone, hope your all as good as can be. heres an update to the update :-)

Saturday was interesting..

So on Saturday I met my consultant who having seen the local MDT on the Wednesday before, had seen another MDT team on the Friday before our appointment. I'm not to sure what this other MDT does, but it sounded like they were from a broader geographical area and it also sounds like they have more sway over the local MDT, does that sound right? 

Anyway from feeling confident Active Monitoring would be an option on Wednesday, on Saturday that moved to being advised that the 2nd MDT or board or whatever had advised treatment was the way forward. either radiotherapy or surgery. 

Listening to the arguments from the what I will call MDT2, I can see there points and they are valid, don't want to let it breakout, large chunk of cancerous cells, secondary cancer as already have the lymphoma, etc. But I have to say that its clouded to situation a bit, 2 MD teams with differing views.

I have a scan today to look at whether there has been any growth in the lymphoma and to determine if it will impact any treatment. I then have a further follow up appointment with the urologist on Saturday to look at the results and to discuss options.

Should be another fun weekend ;-)

P.