Update!! Will also update bio with shortened version
Today we had our first Oncology appt.....so far our treatment has been first class, we can not fault the service we have had♥️
Best news......PSA has dropped to from 134 to 2.9!!!!!! Absolutely fantastic news.
Oncologist was fantastic, explained everything thoroughly, spent so much time going through all Paul's test results and history.
Today we had BP checks and ECG....all good.
Blood results - PSA 2.9, testosterone 0.9
Alk Phosphate - normal
She showed us bone scan, told us not to panic and explained everything clearly.......bone mets in spine, pelvis, right hip, several ribs, left shoulder and right femur......high volume disease.
T3NOM1b, no gleeson score as biopsies not done but Oncologist opinion is aggressive, at least 8.
No spread to lymph nodes but she did flag up he had gallstones, cysts on liver and a hernia which we chuckled about
, nothing requiring treatment.
Several tiny lesions on lungs but again, no concern at this time.
Due to Paul's age and fitness, several treatment options open to him -
1. Stay on Degarelix only (he will be on this for life)
2. Take Degarelix and add either abireratone, Enzalutamide or Apalutamide
3. Triplet therapy - Degarelix, darolutamide and docetaxel.....
We have a decision to make, we are swaying towards the 2nd one, Oncologist seemed to think this was best option as it would be good to keep chemo in the toolkit for later and as quality of life is so good, this seems sensible. She also mentioned that radiotherapy will be an option if bone mets start causing pain not controlled by painkillers or there is a risk of spinal compression.
We also visited Maggies, see photo, what a special place that is♥️ .....Will be regular visitors....Paul was reluctant to go but is now considering going to the monthly group for PC
Didn't ask about prognosis today cos it doesn't really matter and who knows for sure anyway
....just take each day as it comes, none of us are here forever
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Hi Polly1912
what brilliant news re PSA and sounds like a very informative and positive meeting at least as far as options go. So happy you visited Maggies I knew you’d be impressed. Enjoy your break away and return ready to forge ahead with the treatment plan chosen 
Hi Johnam
My husband due to start abiraterone shortly before RT in November. Is the main side effect of Abiraterone tiredness … i know there are so many mentioned ln the leaflet but always hope they will be few and far between 
Thats wonderful to hear he is responding well to the treatment Liz️ ️.....we have so much information to read about different medications, the Abireratone seems like a good choice.
All the very best to you and OH xx
It's amazing news! We are so happy️
Yeah i think we will mull over our decision while in Benidorm 
.....managed to get a great travel insurance quote too, just need to update them after we decide on next treatment choice. Thank you for all your support ️
Thank you KJ911 good to hear you are tolerating the meds well. The flushing seems to be to the fore with most of the meds. Husband takes Millibob’s recommendation of sage tablets which probably help keep to a minimum ( although when they are bad he always states he is glad he is bald 
) I have been on long term use of steroids for a totally unrelated issue and I can’t say I have noticed any side effects but i realise many people do.
Wishing you continued progress
So happy you’ve had that all important meeting. I feel sure you are going to enjoy this break away so much more than the last when you were in limboland! Hope we may all meet one day at our marvellous Maggies 
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Hello Polly1912
Well that's a very positive post and it looks like you have got yourself a very good oncologist who has the time and inclination to look after their clients.
Have a great break in Benidorm 
and come back ready to take on the next part of the journey.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
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Thank you Brian️
All the best decisions are made in Benidorm!!
