Prostate Cancer and Follicular Lymphoma

Hang in there.

I'll be praying for you and hope all goes well on Saturday all the best Ulls 

With a Gleason of 7 I don't know that I would have chosen active surveillance though T1B is a moderate risk trying to balance everything with lymphoma is difficult so can understand your dilemma - especially with two different MDT teams giving differing opinions.  Have you had an MRI preferably a multi parametric MRI to see the position of the tumour as this can make a difference as it did with me as the tumour was bulging out of the back of the prostate and there was no way they could know if cancerous cells had already broken out.  I had 9 months of Hormone Treatment and 20 days of Radiotherapy and here we are over 5 years later with 0.01 PSA and to all intents and purposes "cured" as we had all hoped.  Never feel safe though. 

All the best for and hope your discussion with the urologist is enlightening on Saturday.

Thanks dj999, I will

Thanks Ulls, I'm pretty sure all will be ok. 

Hi Freefaller, I've had a number of MRI's over the last year, not sure about them being multi parametric, I'd have to ask about that.

On the last mri he was able to see 2 areas of concern, one on the left and one on the right and he has confirmed there are no breakouts currently. I think my minds decided that for peace of mind and due to the increased risk given I already have one sleeping cancer, well I'm hoping its still sleeping now, that treatment is the logical decision. 

Hope all goes well for you.

Hi everyone, hope your all  as well as can be

So my latest scan results showed no changes in my Lymphoma confirming the 3 years of chemo and immunotherapy treatment is working and that there has been no change in the Prostrate cancer either, so far so good.

This news paved the way for a decision on  what treatment to opt for, radiotherapy or surgery and I've decided on radiotherapy, starting with 3 months of Hormone therapy. 

I'm now being referred from the Urologist to an Oncologist, so hoping to see him next week as he is on leave this. In the meantime I've been prescribed with Bicalutamide by the Urologist. 

Whilst I know everyone is different, forewarned is forearmed, so do anyone have any guidance, sage advice for starting out on Bicalutamide? 

I also read it make you tired, as a keen but slow runner, I'd like to continue training throughout the treatment if possible, its something that I did during Chemo and helped me mentally and physically. Anyone have any experience of training whilst on this HT?

Last question, work, do people on HT carry on working or go on the sick or is this a personal choice?

wishing you all well

P

Hi Phocused, It's really good new that treatment is working so far, the Urologist started me off on Cyproterone Acetate prior to starting hormone treatment, this was to stop the potential for cancer flare on commencement of HT.

I don't run but walk every day not to fast as I get out of breath and have to stop every few metres before I can recommence.

don't know if you are on the incurable site but there are plenty of runners on there, park runs, and that sort of thing, also other members say that they do work, you probable need to discuss with your employer and your oncologist before making plans.

All the best Ulls

Hi,

I carried on as normal all the way through HT and radiotherapy going to the gym at least every other day and doing all the things I normally did.  I did have a nap - but been napping when TV on in the early evening for years so not sure if it was worse when on HT and Radiotherapy.  There were men at my Cancer Centre who continued to go to work even whilst on Radiotherapy having either an early morning slot or mid afternoon so that they could work either mornings or afternoons.  Some also came to have their radiotherapy in the evenings - our radiotherapy department was open until 9 so they came and had theirs late and managed to work full time.  Personally, I would have had difficulty working full time but probably part time would be OK.  It would depend on how far from the radiotherapy centre you live and where your workplace is situated as I could imagine it being difficult with traffic.  HT shouldn't stop you working but for the reasons given above feel it could be difficult to work full time whilst having radiotherapy.  Though of course some could work form home.