Not eating

  • 283 replies
  • 129 subscribers
  • 18195 views

Not sure if I am duplicating this on another part of the site, but  my husband (77) was diagnosed with advanced prostate cancer about a year ago.  He has multiple bone mets throughout the skeleton and whilst initially on Firmagon (hormone therapy), he has changed to Prostap as he had too much pain from the first. 

He has bladder incontinence which is manageable by wearing pads but has been having often uncontrollable diarrhea every day for nearly four months.  He has had an endoscopy and a colonoscopy so far and oncology say nothing to do with the cancer.  He recently had an MRI to rule out spinal compression and a contrast ct scan.  Nothing sinister found that they didn't already know.

However, my biggest worry is that he can no longer can eat.  I have tried everything, obviously including his favourite foods.  He can manage sweet things like fruit, yoghurt and soft deserts but he just cannot mange more than a couple of mouthfuls of any savoury food and is having Energy drinks supplied by the doctor.

My questions are, do other sufferers have bad diarrhea and is total lack of appetite and inability to eat normal.  He is going downhill so fast and also getting dehydrated too. I am at my wits end trying to help him.

  • Hi Stromness,

    Thank you so much for your concern.  I have to say our doctor is incredibly supportive.  I am seeing a lady from a team who look after Carers.  Not really sure how she can help. The problem is that my husband has good days, and then really bad days.  It is not the physical work of looking after him and a largish house and garden, it is the constant stress of battling his mood swings and also the changes in his general health.  One minute he seems to be on his way out but now on the steroids for his Collitis, he seems to be making progress.  It is the emotional stress that I find the hardest to cope with.

    All my friends keep saying I need some respite care so I am looking into having a break with my daughters and grandchildren in August and putting in place a carer so I can have a week without the constant worry each day. I have been told that he plays me up.  He seems capable of things when I am not there but the moment I am, he suddenly seems to be in pain, short of breath or some kind of problem.

    Hey ho, it is what it is. Having not had a holiday for over two years, I am seriously in need of a break before I burn out I think.

    Best regards

    Gina

  • Hi Gina

    Wow! You are some resilient lady!

    A week to look forward to in August sounds just perfect.

    I'm so glad you have such a good doctor, family and friends.

    Thinking of you.

    Stromness

  • Gina,

    How's it going?  Weather is beautiful up here.  Yesterday I went to my Prostate Cancer Course at Maggie's on my bike.  First time in over 4 years (because of the blood clots & trying to get better, then Pneumonia, then Bloody Prostate Cancer).

    Hottest afternoon of the year so far.  I felt like I lost about 5 stone (no such luck).

    Just think, it will soon be August and you can get your break.

    I bet Richard is on his best behaviour then!

    You'll get back and he will appreciate you more .

    Take care and have a lovely weekend.

    Steve (SteveCam)

  • Hi Steve,

    Well I thought he was progressing but he seems to be losing his appetite again. Last two evening meals he ate a little, but not nearly enough. This lunchtime I made him one half of a bagel thin with smoked salmon and cream cheese. He had one bite and then just ate the slice of smoked salmon. Grrrr. 

    I told him some time ago that orange juice, his favourite, was too acidic for someone with gastritis, duodenitis and oesophagul candida. I bought some cartons of apple juice which would be better.  So what did he do yesterday, which I have just found out, opens a carton of orange juice.  In one ear and out the other.

    Do you have problems remembering things and get confused. I know you are a mere youngster, but he acts more like he has alzheimers.  My father suffered from that and there are so many similarities.  I know he has some shrinkage in the brain having had to pay for a private MRI to try and find the cause of his swallowing problems, but he has no ability to concentrate, solve problems or remember things.  Would this be the cancer or the hormone therapy.  I know women who are struggling to get hrt treatment are suffering dreadfully from what is deemed brain fog and he seems the same. You had any problems? Perhaps you have had trouble distinguishing one cow from another Grin

    Very hot here, who needs a holiday in Spain (meeeee).

    Cheers

    Gina

  • Gina,

    Why would Richard be pouring drinks in one ear and out the other?  Hmm...

    Yes I do have problems remembering things.  My father died of Dementia a couple of years ago.  He was in a home in Newmarket, I only saw him once there.  This time last year I was paranoid about ending up like that.  It was worse than any Cancer thoughts.

    I was referred to the Memory Clinic, they done some tests, reckoned I was ok.

    Had a brain scan a couple of months ago.  Came back clear(ish).  My specialist just told me that my Cerebellum was smaller than it should be.  Panic stations again???  No not now.  Last year, yes .

    I know that the waiting lists are getting longer and longer.  When you need help, by the time you get help, it's sometimes too late.

    It's funny, you never get 2 cows the same, their passports are all the same, no photos though.  Imagine Cows queuing up at Morrisons to use the Photo Booth.

    Steve (SteveCam)

  • Gina,

    Only me again.

    The worst thing for me is waiting for test results, the fear of the unknown, gets me every time.

    I can imagine it being worse waiting for a partner's results.  Well, I can't, but you know what I mean.

    I'm at the waffling stage so I'd better go.  I'm good at waffling.

    If I went on Mastermind, my specialist subject would be "Waffling".

    What would yours be?

    Steve (SteveCam)

  • Steve,

    Mum had Dementia and dad had Alzheimers so what hope have I got. Who did you say you were again???

    The symptoms were very different.  Dad just slowly disappeared in front of our eyes.  He was a civil engineer and brilliant at diy, carpentry and fixing things.  To see him so frail and unable to remember things was heartbreaking. However, the carers would often tell me about the odd jokes he would make.  He had a cracking sense of humour and it was nice to see it suddenly appear, especially when he seemed to be away with the fairies.

    My mum, on the other hand, had what what they called Sundowners often.  She would imagine all sorts of weird things and nothing on earth would persuade her otherwise.  She thought a cat had slept on her head all night (she didn't have a cat). There were ants in her bed. My daughter was her carer and had to strip the bed regularly to find the non existent ants.  There were mice another time and a man who apparently let himself in and slept in a spare room every night.  Tell her she was dreaming it and she would hit the roof. 

    The worst was when she would suddenly ask me where dad was.  She would say, why is dad not coming down for dinner, or has he come back from shopping.  Telling her he had died two years earlier each time and seeing the look on her face was heartbreaking. 

    At least if I had vascular dementia too, I could live in a world with ants, mice and lodgers and I would be none the wiser Laughing

    Cheers

    Gina

    p.s. I am a champion waffler too

  • Gina, 

    If you get the Ant ants first, then the mouse, the Mouse2mouse could eat the ants.

    Remember "There was an old lady who swallowed a fly"

    It's easier to make jokes I think.  Not about you, about the situations.

    ... and be none the wiser.

    Steve (SteveCam)

  • Well that is very sensible.  I will make sure I imagine them in that order.  Then the cat who would obvs catch the mouse.  Hey you are clever, good thinking Batman!

    Gina

  • I don't know why she swallowed a fly?

    Other people reading these will think we are mad.

    Who cares.

    Steve (SteveCam)