Not sure if I am duplicating this on another part of the site, but my husband (77) was diagnosed with advanced prostate cancer about a year ago. He has multiple bone mets throughout the skeleton and whilst initially on Firmagon (hormone therapy), he has changed to Prostap as he had too much pain from the first.
He has bladder incontinence which is manageable by wearing pads but has been having often uncontrollable diarrhea every day for nearly four months. He has had an endoscopy and a colonoscopy so far and oncology say nothing to do with the cancer. He recently had an MRI to rule out spinal compression and a contrast ct scan. Nothing sinister found that they didn't already know.
However, my biggest worry is that he can no longer can eat. I have tried everything, obviously including his favourite foods. He can manage sweet things like fruit, yoghurt and soft deserts but he just cannot mange more than a couple of mouthfuls of any savoury food and is having Energy drinks supplied by the doctor.
My questions are, do other sufferers have bad diarrhea and is total lack of appetite and inability to eat normal. He is going downhill so fast and also getting dehydrated too. I am at my wits end trying to help him.
Oh, not tried the voice bit. Always thought they would come out completely different and probably lots of rude words.
R not good again tonight. He keeps complaining of a pain in his side. Alongside his gastritis he also has duodenitis but I have to be honest, he thinks not eating and drinking beer and gin is a good thing to do, despite him being told otherwise. I went out for the day to see my grandson's play and when I get back, despite making him a healthy breakfast, all he has eaten is a banana but he has managed a bottle of strong ale, plus a large measure of gin which he has drunk in secret and would not admitted to. I am beginning to have absolutely no sympathy with him now.
There, I have opened up to you. I have done my best to keep him from drinking, albeit not in huge quantity, but this is seriously not helping his gastric problems. Unfortunately he is denial of anything and if I challenge him, it just causes a row.
I know he gets depressed, but this is not the answer. Having read lots of messages about men trying to exercise and eat healthily, I am afraid he does absolutely nothing to help himself.
Best regards
Gina
Gina,
The voice thing sometimes doesn't understand my accent. Then I swear at it! Then have to delete the swear words. It doesn't put the punctuation in either! Not that I am asking much.
You should lock up the drink. Tell Richard he can have one after he eats his food.
I can understand that he is frustrated and probably think "If I can't eat, I will drink instead."
He needs to look at things from your side, how all of this is affecting you!
I know that I don't exercise enough (well never really). Never been into it. I walk for 30 minutes a day (there and back to work).
Tracey and I used to go walking every weekend up to Covid. We still haven't been out anywhere since the first lockdown in 2020. Only to work, the shops and hospital appointments (last year alone I had between 60 & 70 medical appointments).
With the Gin bottle, dilute it to see if he notices.
I found that counselling sessions helped me immensely. I had counselling from November to April through a charity called 'Coping with Cancer ' based in Newcastle.
There should be some similar Cancer Support charities down where you live.
I've been on the waiting list for the NHS 'Talking Therapies' since September, still on the list.
Counselling for yourself would be a great help.
Better go, the Cows are calling!
Steve (SteveCam)
Hi Steve,
Love the idea of you swearing and then having to delete, you sound like me!!
Last time R was in bed, I took all the bottles of booze out of his office where it was all kept in a sideboard and put them in the kitchen. I have to mark all the bottles, otherwise he takes swigs from them if not. The problem is that he goes out and buys his own secret gin and puts it in his cupboard. He keeps forgetting that I know all about it and we have had so many rows about his drinking.
Don't get me wrong, I love a drink and have a whisky and then a glass of red with my meal every night, but I don't feel the need to drink during the day and anyway, I am far too busy to stop and drink anyway! He has no hobbies and for the last few years since closing the business, he just sits in his office reading things on the internet and to be honest, I am sure his drinking has stemmed from boredom. However, it is so bad for his health. The doc came out whilst he was in bed the other week and discussed the Respect Form. Not sure if you know about this, but it basically it is a DNR consent should his heart stop.
He hasn't had cancer counselling but does have a Mental Health Lady call frequently, and this amounts to the same thing really.
Well I need to go and water the greenhouse and pots now and you must keep your cows happy!!!
Cheers
Gina
Hello Gina
What a nightmare you are going through.
You must be so very close to giving up, and Richard sounds as though he virtually has.
Are you able to ask a Specialist Nurse if you and Richard could get some advice from a hospice? I would think they would be the specialists when it came to the situation you both find yourself in.
You both need expert help and advice and I hope to goodness you get some.
I feel for you both and hope against hope you can get through this horrible, horrible time.
Very Best to you both.
Stromness
Gina, I agree with Stromness about expert help and advice.
Would you be for Richard going into a Hospice? I know it's hard, especially when you have been together for years and years.
You deserve a bit respite.
I really hope things start to get better for you both.
Big virtual hug!
Steve (SteveCam)
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