Hi everyone,
I'm new here and just looking for maybe a bit of reassurance/clarification as I've been an absolute mess the past day or so.
My dad is 71 and had a prostate exam just before the first lockdown, so a couple of years ago now! All seemed fine. However over the past 6 months, he's had issues with needing a wee more and with urgency. Obviously he went to the doctor and had a physical exam and a PSA blood test. He was sent for an MRI scan this week and got results yesterday.
The doctor has said there is a "mass" that's been detected and apparently on a scale of 1 to 5, its near the higher end. They also did a urine sample and the Dr said that what they found in the urine sample can't be ignored, so my dad is waiting a date for a biopsy within the next couple of weeks. I wasn't with my dad when he got these results, my mum was so this info that's been relayed.
I am absolutely fearing the worse. Deep down, I know it's cancer. I suffer with my own mental health issues and had a panic attack yesterday after reading all sorts on Google. My dad's iron and b12 levels were also low but are now fine after some medications, but I read that anaemia is associated with advanced prostate cancer.
My dad is in denial and/or naive about the potential severity of this. He suffers with polyps and he thinks this is all to so with those. Which is frustrating because it obviously isn't. I don't know if he's trying to brush it off for mine and my mum's sake.
My questions are really, could it be just an enlarged prostate with all these symptoms?? If it is cancer, it seems to have appeared or started showing signs within the last year, is that a sign that its a fast growing tumour?
What do all these things mean? If anyone has similar stories or experiences, I'd really appreciate hearing them. I honestly can't think about anything else and it's very hard to stay away from bloody Google :(
Thank you x
As you say PSA of 6.8 is not that high so it would seem unlikely that it has spread any further. It may still be treatable with Radiotherapy most likely with Hormone Therapy for a few months - usually for at least 6 months before starting the Radiotherapy. Mine was just inside but they couldn't rule out T3 disease because the tumour was pushing on the back of the prostate into the rectum. Therefore Radiotherapy was the best treatment as the radiotherapy would likely "mop up" any stray cancer cells within the area. 5 years on and my PSA is still undetectable and I am as fit if not fitter than I was before all the treatment which I had at 73. So, to all intents and purposes a cure as my urologist stated during the MDT.
You can sometimes wait another couple of weeks after the biopsy for the Multi Disciplinary Team (MDT) to meet and discuss your Dad's treatment plan. It all depends on when they meet - it's usually once or twice a week so it is easy to miss the meeting depending on the timing of the biopsy and when the lab sends the the results through. I was lucky as my results came through on a Wednesday and the Team met on the Friday so I got mine in exactly 2 weeks but had my results not come through until the Friday I would have had to wait until the next meeting. The waiting is torture - almost makes me want to swear. However, once all the results are in and things start moving they tend to move fast.
Hope you have managed to have a good Christmas with your family. If nothing else this makes you realise that you must make the most of every moment with your family and friends.
Take care and hope the New Year brings good news for you all. Keep in touch and let us know how things go.
Thank you so so much for your quick and helpful reply. Yes keeping fingers crossed his biopsy and bone scan don't provide any extra negativities.
To be honest after all the reading and panicking I've done, reading his psa level and tumour type has put my mind at ease as I was massively catastrophising. T3 obviously still isn't great by any means but at least we know it is treatable and potentially cureable.
Sounds like you're doing great! Good on you :) hope you had a good Xmas too and happy new year!
To be honest you never feel safe again as I still think PCa could rear it's ugly head again and I know my wife and family worry about this too - especially when it comes to the end of the year when another PSA test is due. Each passing year should make this less likely but it doesn't stop the worry. I hope and pray that the biopsy and any other test results do not show any further spread and that your Dad can go on to be treated successfully.
Here's to a HAPPY AND HEALTHY NEW YEAR TO EVERYONE.
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