My husband had a radical prostectomy 18 months ago and we were hopeful everything was removed, but the surgeon said he couldn't be 100% sure but fairly confident. His first PSA test post op qas 0.1, which we were pleased with and all seemed well. We were told is was aggressive though and he would be kept a close eye on.
Covid then struck. Further follow ups fell by the wayside. He had a PSA test in June 2020, that was 0.4, which worried us slightly but no one else seemed very concerned. I asked for a further blood test in September at local surgery, that was 0.8. Now we were very concerned and I started chasing the hospital. They were very good and the oncologist said take another test in December and we will see how things are progressing. The next test was 1.0.
They also are very concerned now. In January a PET scan was organised and we got the result of that last month (Feb 2021) It was horrible news and I still haven't got my head around it. The cancer has spread to his bones and is also in the prostate bed (which is where we assumed it was). The only treatment option available for him is hormone therapy, which we know is just palliative care. He can't have RT as he had testicular cancer 45 years ago and although that saved his life it did a lot of damage also. He is a very fit and active 76 year old, but is so worried about the treatment and the future. His first injection is this week.
The oncologist said he was talking years rather than months but that the HT would eventually stop working. He is one of four brothers and all four have had prostate cancer. Two have died, one seems to be 'cured'.
I am so scared for him but also frightened to death myself. I am constantly bursting into tears and feel bloody awful and stupid for being so emotional and selfish.
Sorry just wanted to cry and rant a bit.
