Had my first 3 monthly Prostap injection 3 weeks ago. So far, apart from soreness at the injection site for two days, no side affects whatsoever, is that normal?!
If anybody had a PSA of 25 that would raise a lot of red flags, although mine is creeping up ( 2.7 ) now if it reaches 4/5 then I have asked for plan B as mine is incurable, to me once it starts to climb, then that means all is not well.
I and my wife discussed this situation with our consultants at Salford Royal, making it very clear, that any rise means something is not right. personally I would seek advice, when you look at various web sites a reading of 25 is regarded as high. stay safe
Just an update now I've had my second injection. Since last saying I just had hot flushes I've now got more side effects! Complete loss of libido, pains in the top half of my legs, feeling kind of weak and also the hot flushes. Having a blood test very shortly so will see how the PSA is when results are back.
Will certainly be glad when I'm off Prostap and these side effects go!
Been on prostap for nearly four years, hot flushes, no sex drive, tired and fatigued, these plus others are all side effects expected with prostap, but check with the doctors, just in case.
joeven sounds like classic symptoms of a drop of testosterone. I'm on decapeptyl and struggling with the same. The only saving grace is knowing that the cancer is being starved.
Not unusual but always tell them about your side effects just incase. We can make the mistake of thinking that everything is a result of the cancer or the treatment and sometimes it isn't.
I was reading through the posts on this discussion and noticed we have more in common than just PC. I retired from BT in 2015 when I was 60, I had a plan in place, my wife & I made a bucket list for when she retired. Then PC comes along out the blue and changes everything...........bugger!! Just have to work out things smarter and tick off the list as my treatment allows. The good things are, I`m getting treatment that appears to be working at the moment and our list is getting smaller even if it`s a bit slower than we would like.
Here we are in the club no one wants to be in! I hope treatment is going well for you.
I was with Openreach since 2006 as a field engineer but had for a year prior to diagnosis, been carrying out cab up grades, to make them much more user friendly for engineers to use and mean less service interruptions for customers.
I was PSA 259, Gleason 9, stage 4 incurable and had six rounds of Docetaxel as my cancer is very aggressive I was told. My line manager was brilliant, he told me to not even think about work and all I had to do was organise sick notes. To cut a long story short, I never returned to work, after a HR assessment, it was decided that I wasn`t fit enough as the cancer has caused nerve damage, giving me numbness (neuropathy) in my legs and both arms and hands, so I was never going to be allowed to climb another telegraph pole or even a step ladder, so in March 2019 I was medically retired.
As you say, plans go straight out of the window, luckily I had advice from Macmilllans and secured ESA payments and, with Macmillan help, PIP and a blue badge as walking is an issue for me. I swim, when I can, but walks are a thing of the past.
Currently on PSA 3.0 and Zoladex HT plus a bucket load of tablets everyday, but I`m still here.
Even had a holiday villa booked in Florida in April.......................................oh well, at least we had full refunds.
I`d be intrigued to know your stats at diagnosis and your treatment story.
Thanks for your reply. I joined PO Telephones in March 1980 and finished up in Private Circuit provision & maintenance as a TO for over 20 years. Always planned to retire when I turned 60 and that's what happened, absolutely no regrets and maybe just as well now that I have Advanced PC. I had no symptoms to speak of just a bit slow when peeing but no pain or blood, I was not even getting up during the night to visit the toilet. I went to my GP who gave me a PSA test and when the results came back he was as shocked as me. First PSA was 74.8 and was sent to the oncology clinic at my local hospital where I had a rectal examination and another PSA test which returned at 86. I then had an MRI scan, Bone scan and CT scan which showed I had mets in my spine, hips, pelvis, ribs, sternum and shoulders. It has also spread to my lymph nodes and I have 2 nodules in my lungs for good measure. My Gleason score was 4+5 = 9.
I was started on Prostap HT and was supposed to receive 6 sessions of chemo 3 weeks apart, then the lockdown happened. In my opinion, I think the lockdown did me a favour as all chemo was stopped and I was put on an alternative treatment plan. I was lucky enough to be put on Abiraterone + Prednisolone to work along side Prostap HT which I now get every 3 months. The Scottish Government have decided to allow newly diagnosed men with advanced PC to receive this drug although in England NICE have refused to do the same due to cost factors etc. This is what I was meaning in another post when I mentioned Post Code Lottery. My treatment with Prostap and Abiraterone is going well with my PSA dropping from 86 to 2.7 then 0.2 and now its at 0.1. I have some bone pain in my pelvis,spine but especially in my right shoulder. My consultant is very good and she is based at the Beatson in Glasgow. I was one of the lucky ones who managed to get a holiday to Lanzarote in February but that had a sting in the tail with an appointment letter from the oncology unit waiting for me when I got home, this is when I found out I had advanced prostate cancer which was incurable, 9/3/2020 a date I will never forget!
The side effects vary from day to day and range from hot flashes, insomnia, breathlessness and weight gain but the worst is fatigue, I just seem to be tired all the time. But as you so rightly pointed out we are still here. I am going to phone MacMillan tomorrow for advice on benefits as I can hardly walk to the end of the street never mind exercise.
Hi, i had my prostap injection 4 days ago, first two days i had hot flushes, headaches and feeling sick on the third day all this disappeared and today is fourth day i am feeling very good not sure thought if i countinue feeling so good late on..
not sure thought if i countinue feeling so good late on.. 
