My dad was diagnosed with stage 4 metastatic prostate cancer January 22, 2018. Gleason score 10 in all 12 biopsies. Cancer is in lymph nodes, pelvis, spine and ribs 5 - 11. Had 11 rounds of Taxotere that brought PSA from 230 to .15. Also had hormone therapy (xcheva and lupron). After 4 weeks PSA rose to 13 after stopping Taxotere, so started on a chemo pill for 2 months, PSA still rising, did another 4 rounds of chemo, nothing was working and PSA kept rising. Referred to OHSU for a clinical trial and had a PSMA PET scan along with CT and additional bone scans. Cancer seems to be spreading, PSA now up to 54. Starting on Xytiga but were being told that there's not much else to try if this didn't work. He didn't get into the nuclear medicine trial, so what else do you recommend?
Hi and welcome to the online community
I'm very sorry to hear that your dad has metastatic prostate cancer and that he's been told that if the Xytiga doesn't work there isn't much left to try.
I'm not a member of this group but I noticed that your post hadn't had any replies. This could be because no one in this group knows of a current trial for your dad to join or simply because your post hasn't been seen yet. By replying to you it will 'bump' it back to the top of the page where it will hopefully be seen by someone who might be able to tell you about a trial that they're on. I'm also going to tag this group's Community Champion into my reply as he may be able to help further.
If you don't get any responses you could type the word 'trial' into the search facility in this group to see what previous posts there are that mention trials. You could also click on this link to Cancer Research UK's trial page to see what trials are currently available. However, the best people to discuss this with would be your dad's team as they have his full medical history and will be aware of what trials he might be suitable for.
When you have a minute it would be really useful if could pop something about your dad's journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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