Continuing high PSA after prostatectomy

Sorry to hear about your PSA after prostatectomy PatBe.

It is not easy to deal with. 

What was your post op histology? e.g. positive margins, negative margins, seminal vesicle involvement, staging.

Hi PatBe

Sorry to hear about the PSA level, but it sounds as though your team are following up with further tests. Try not to worry too much as you can still have hormone treatment and salvage radiotherapy.

Thanks for replying ido4.  It was; negative surgical margins, negative seminal vesicles and negative local lymph nodes, Stage T1c, no extracapsular extension, T1, N0, M0.  But it seems the staging was incorrect now.

Thanks for replying Seamus47. I will have a look at your profile 

Hi PB

Sorry to hear of your situation but your comments of only a few years to live is probably not correct.

There are still plenty of different treatments out there , hopefully you will be stating on hormone therapy follwed by Radiotherapy soon.

Must have been a few rogue cells left behind during surgery but no reason to presume that it has metasised.

What was the Psa just before surgery?

Best wishes

Steve

That’s a hard one to deal with. The PSMA PET scan will hopefully clear up what’s going on.

It is the most sensitive PET scan for prostate cancer. I had an F18 choline PET scan at the end of 2016, nowhere near as sensitive but it still picked up things.

Are you in the UK? If so I would recommend having a chat at a Maggie’s centre if there are any near you.

They were very helpful at putting things into perspective for me and giving me coping techniques.

We’re all here to help. When is your scan scheduled?

Hi Grundo thanks for that.

it was 17ng before surgery. So I guess only 13 of that was as a result of the normal and prostate cancer in the organ

Fingers crossed that the PSMA doesn't shown anything sinister, with a still lowish psa hopefully it's still in the prostate bed area although I know histology doesn't show that.

Steve

Hi Ido4 thanks very much for your helpful words. I am not based in the UK so cannot use one of those centres.  My scan is on 2 April.  One major concern I have is the effect on my work. I was onsick leave for 6 weeks only recently. 

Did you have radiotherapy and were you able to continue working through it?  Also has anyone else worked during radiotherapy?

Thanks Steve. Yes it is mysterious that I showed negative surgical margins and no local lymph node involvement - unless of course it is located in my bones. Whether you can have metastases without any local spread is something I have not been able to find any information on.