Nanoknife or IRE treatment of Prostate Cancer

Hello

I was wondering if you can give out an update  as of  24th january 2018.

After various psa tests over a 5 year period I have just been diagnosed 3+4=7 one side. I have been advised from by my consultant to have the nanonife procedure. My Insurance won't cover this so it will be expensive. 

As it is difficult to get first hand feedback from patients Im iterested in your story as I am just about to follow you. thanks in advanceTC

Hi Colin 

Good luck today if you are still going in for the op. 

Keep us informed of your experience

Cheers

Pete

Hi TC

26 Jan

Overall feeling great. 

I have had a couple of urinary tract infections over christmas but put that down to overworking  and getting run down. (Was working 70 hour weeks on a project). Life has calmed down now and back to full fitness. 

In hindsight I think the op knocked me about a bit more than I thought. 

I did go back to work after a couple of weeks but would now take 4 off and get completely well. 

I have yet to organise another MRI and PSA test.  Have not done it yet due to thinking the UTI would give a false PSA result and TBH being a bit scared of the result. Putting it off until early march now. 

The Clinic also ablated the top of the prostateto see if it would assist my bph symptoms and this seems to have worked really well.  Peeing like a teenager and not getting up in the night anymore. Also it is nice to have a couple of beers and not dash off every 5 minutes

Overall feeling better than anytime for years. Looking forward to retiring next year and living for a while yet. 

If the results are as hoped it was money well spent. But even for the bph bit it was worth it 

Cheers and good luck. 

Hi Pete, 

Yes I had the op today in London and remember I said it was in both lobes, well he managed to do them both at the same time So that could save me quite a bit of cash!

I am just coming to terms with the catheter it's quite uncomfortable at times but I will persevere, I have a 3 hour trip back to yorkshire tomorrow so we will see how it goes.

I am scheduled to be back in London next friday to remove the catheter and have the follow up mri, so hopefully I will be a little wiser and it was successful.

Hope your mri is positive, all the best

Colin

Great news Colin

On your way to being well again. Take it easy and recover, It affected me more than I thought it would. 

The Catheter will be uncomfortable for 2-3 days then you get hardened off a bit. 

Hope you have a flip flow valve on the catheter and not a bag. Much easier. 

Keep us all informed it is comforting to hear people beat this. 

Thanks again

Pete

Thanks Pete,

I am getting a little used to it today the only thing I find is I get painful moments of wanting to urinate normally, it tends to want to bypass the catheter these are really painful for an instant but the pass quickly, did you have the same and do they get easier?

But otherwise no complaints and let's hope it's onwards and upwards from here for both of us.

Colin

Hi Colin

Yes same for me in fact the urine came doen the outside of the pipe sometimes. 

I was told this is normal and the need to urinate is the catheter bulb in the bladder resting on the nerve that tells your brain you are desperate to wee

You just get used to it. Use the tenna pads they supply to soak up the mishaps its only for a couple of weeks. 

I had mine in for about 3 1/2 weeks but that was unusual

Good luck on the train

Cheers

Hello Pessimist1950

One of the catheters I had made me feel like I wanted to pee. I put up with it for a week just thinking that’s what catheters were supposed to be like, but they’re not. After a week, by chance the doctor saw me straining and got a urologist to move the catheter into the correct position. It had been placed incorrectly and was rubbing on a nerve. As soon as it was repositioned the feeling of needing to pee went. 

It could be worth you asking them to check yours.

All the best

Jim 

Hi Colin,

I am very interested in the treatment you received and how you progress as I have today booked a first consultation for the 27th February with Prof Emberton to discuss having either the Nano or HIFU treatment.

Got my diagnosis last Thursday with Gleason 7 (3+4); 30% in one lobe with T2a rating.

Did you discuss these two options with Prof Emberton? If so what made you go ahead with the Nano? Did you feel pressured in any way and were there any negative aspects that it would be worth knowing?

I hope you are recovering well. 

Regards,

Dan 

Hi Colin. 

How are you doing. Be good to hear your feedback after your op 

Hope you are improving fast

Cheers 

Pete