Results day

Hi PB 

That's not too bad really, low Gleeson, not particularly high PSA, good if inside gland which it probably is.

Try and find out tumour size when next talking with them, just handy to know.

Anyway start thinking about treatment options in due course, surgery, RT or Brachy, 

Think you'll be ok.

All the best

Steve 

Hi Pompeyblue - The PC (which I expected ) is not as advanced as I thought so, ironically, you’re in a good place.  Two important things to focus on now:

1. You’ve been offered the gold standard for diagnosis- a PSMA PET scan.  Take it.

2. You may be a candidate for focal therapy (which has few side effects). 

I will follow your case with interest.   AW

Hi Darren,

Looking at what you been able to say so far it seems that you are going to HAVE all the options.

The PSMA PET Scan you mentioned will be definitive. It seems to be suggested to make sure they your consultant knows everything there is to know about your cancer.

One thing to say is that there is a good level of treatment for all stages of prostate cancer. It would not be unreasonable to suggest that it is all treatable.

Given your present stage of knowledge it is very likely that your cancer is not only treatable but curable - you may hear the phrase describing your treatment as being with “curative intent”.

So, what to expect.

First, there is going to be information. Stacks of it. It is going to look like it is just too much, but you will find that, in this case, it is well worth understanding. Your consultants will want you to make decision, and being clear about it helps hugely.

if your are comfortable with a computer your can find all those leaflets and much more online.

One thing I do when I feel a bit overwhelmed is to open the document on my computer and then upload it into one of the common AI’s. I’ve used all of them and they are pretty good in analysing documents.

i tell the AI to summarise the document and explain it to me as if I were 14. That gives me the bones of the thing, and then I read the whole again.

The result will be a clearer understanding of where you are, and you will be able to ask questions and receive answers with much more confidence.

Hi Pompeyblue sorry you have joined our club but your results all look very curable so far.  Consider yourself lucky that you have found it now rather than a few years down the line when it might not be curable.  Come back on here anytime and we can help you through this and in a couple of years when you are hopefully clear, you will look back at this time and wonder why you were so concerned.  Stay positive.

thankyoyu all again for repying . the shock of actually knowing is still hitting me hard

and is all i can think about when i fisrt wake up ( if i sleep ! ) i kind of forget then it all comes flooding back ive got cancer and i break out in a sweaty mess

i cant seem to get my head around it and feel positive

now this psma scan is worrying me its just one thing after another

my missus is more positive than me which is making me feel worse

i realise there a people a lot worse than me but i feel like ive been hit round the head with a cricket bat

thanks for listening darren

You may well feel like this until all the tests are in and you settle down to a prescribed pattern of treatment.

At that point you will begin to come to terms with a new pattern in your life, which, I think will lift your spirits.

Until that all you are likely to feel able to do is to hang on.

And, probably, swear a lot.

Hey Darren. I too got my results. I was called in on Sunday morning to go through them with Urology. 

like you I was confirmed 3+4=7 Gleason score and Cancer confined to prostate. Although I wasn’t offered a pet scan 

i have an appointment with the Urologist on Thurs to talk about Surgery as thats the option I decided I want to do. The way i’m dealing with it all is promoting Prostate Cancer and getting as many people to apply for tests as possible. It really helps me.

Good Luck on your Journey!

Hi again Pompeyblue , just think along these lines, ok you have cancer but PCa isn’t very fast growing.  In addition you haven’t got a very aggressive version.  Stop thinking you have ‘cancer’ and start thinking ‘curable prostate cancer’ - there is a big difference.

As for opting for surgery, I think my own view would at the start have been to go for surgery.  It just sounds so simple, get rid of it.  However, I didn’t have the option as my version had already spread.  In your position now, knowing what I know now, I wouldn’t opt for surgery without being aware of the success rates of each option and the long term side effects of each.

It’s a personal choice, but make it after understanding the impact.