My husband's second round of chemo (Docetaxel) was suddenly stopped last week and from tomorrow he's starting on Cabazitaxel. Anyone else had this? I'm assuming that its much stronger - especially as a district nurse will now be coming to our home to give him an injection every day for 5 days.
He's in pain and struggles to walk more than about 100ft - we have to walk a mile at the hospital to get to the chemo ward. What will happen when he can't even get in the car for me to take him?
I am afraid that I don’t have answers to your main question, because it is outside my experience. Hopefully my answer here will bump you up to the top of the list so that others with the necessary experience will see it.
However, I can speak to having severe pain whilst getting to the hospital for treatment - in my case severe back pain caused by completely unrelated problems.
it became more difficult as time went on. My daughter press ganged family members and friends into a rota to get me there and back.
We arranged the car seating to give me the best position. That all helped, and I could have fallen back on hospital transport. I could have used a wheelchair.
However, and this is a mental adjustment, there comes a time where you just have to clench your teeth and decide to carry on.
Make sure that you talk to the chemo people about the problem. They can be quite inventive.
Steve
Changed, but not diminished.
Thanks Steve.
A wheelchair is definitely something we are considering; they do have some at the hospital for people to borrow but they disappear fast so there's no guarantee of getting one. I'll speak to the chemo team later today re transport.
In our experience, if hospital transport doesn’t get you to your appointment on time - which was frequently the case for us - you don’t need to panic. If you get there late under your own steam, then it’s another matter, but if they have booked transport for you and it gets you there late, then they understand. For my husband’s chemo, the ward ended up telling Patient Transport that the appointment was an hour earlier than it actually was to allow for this!
Thanks mumstheword - that's reassuring to know.
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