Wondering about what I'll be offered?

Just to say hi,  the good man Brian made me aware of this group so I joined. I was diagnosed last week and learnt after all the scans and biopsy the cancer is on lymph nodes lower back pelvis, PSA 367.5 and GS 5+4, oh well !

I saw this thread and having been started on hormone therapy a couple of weeks ago I am thinking exactly this, what will my treatment look like when I have my first oncology session in a couple of weeks.

its all a little overwhelming at the moment but I’m up for the fight, well I say that now probably be a baby in a few weeks, anyway fighting talk and pos attitude is important for me.

i have one more added strength that being my Wife she is everything I am not ( a little annoying she is so strong and smart but there you go)

For me as long as there is support then what ever the treatment I feel much stronger for it, and honestly I was not sure about using  this site when I joined, however it’s miles better than I could have imagined, everyone is so kind and positive, it’s a real good tonic.

Anyway grubs up so gotta run but am sending my best to everyone and thank you for having me, I’m here to learn and help in anyway I can.

Hello Allex (Allex50) 

So welcome to the group and the Gleason 9 club - yes I don't want to be here too - but hey ho - part of life's rich tapestry!!.

The Relugalix will deprive the cancer of it's food (testosterone) so it won't grow any further. Happy days. So this "stricture from the TURP" is preventing Radiotherapy (I have had a TURP and radiotherapy afterwards  - click on my name or avatar for the full story) so what's the score there - why can't you have radiotherapy to kill the little sods off?

Surgery is a major operation - personally at 79 (fit as a butchers dog) I would be thinking twice!

I am a Gleason 9 - HT is working for me (ish) but it's working, I am happy with life, what's not to be happy with life?

Have you spoken to your team - asked the questions why? Or are you just accepting what's been said?

Gleason 9 with a PSA of 0.45, yes I would be happy with that, mine's NEVER been that low (perhaps in 1955 when I was born).

Just my personal thoughts but happy to chat - we are all different and at the end of the day it's treatment v quality of life.

Keep posting  - we will be able to help.

Best wishes - Brian.

Thanks Brian yes am asking the questions but till I have my oncologist appointment conversations are basic, I get it and have my questions ready.

For now getting 367 down low would be great that said I am a realist and understand where I am in all this, but like I said I am here to fight, and as for the kindness shown, well your right no end of that here.

Just to say I appreciate your comments means a great deal.

Hello Gunner66 

You have the right attitude (Positive), you have the right support (Mrs Gunner), you have your immediate support network (3 children) - and you have this group (amazing support ). We know when to be serious, we know when to look on the bright side and have a laugh but life goes on with this cancer.

Yes I am incurable but live life to the full (perhaps you need to ditch the motorbike - personal opinion ) but your attitude is half the battle, the other half is your team with a treatment plan.

You have started on Hormone Therapy - that stops the cancer in it's tracks from day one - further treatments to follow to kill the little sods off. 

We are in this together  - we have a bond - cancer  - it's crap sometimes and yes it will get to you - but the support here is brilliant 

You are doing great - it's early days but carry on as you are doing and you will do well.

Best wishes - Brian.

Top reply so very grateful, although the bike keeps me sane but have been riding long enough to witness the idiots but yep it’s dangerous and acknowledging that is half the battle, I guess it’s like this in some ways understanding the dangers and going with it.

i like how you describe the people and sure okay it’s not curable but I choose to live with it and the people you defo included make this much more bearable and for that I I am sincerely grateful.

okay did not want to be be hear but like you say it’s mixing the laughs with the serious side, and your right I intend to do just that, ps if you detect I falter you have my permission to give me a good talking too.

To you and everyone I thanks for kindness and acceptance, hoping I can also help as I continue my journey.

Speak soon.

It's OK Gunner66 I have 2 brothers in law and both have given me rides on their bikes - a Moto Guzzi and a Laverda - since then I won't get on anything with 2 wheels - not even a push bike!! .

We are dealing with "serious stuff" here  - emotions, feelings etc run high sometimes, after all it's life and sadly death - don't worry - even I have been on the "naughty step". Sometimes little things matter and they get to us - better to vent and get it off your chest here than at home and we've all been there at some point - trust me!!

We a a group of people all on a journey we didn't want, in a club we didn't want to join but if we stick together and support ecther  - then that's half the battle.

Catch you soon.

Best wishes - Brian.

Brian you are clearly my kind of vodka,

love the bike comments I can understand that my wife refuses point blank.

The group is going to help I know that now and again your comments resonate with me so thanks it really helps.

For now I guess I will try and mater the hormone affects and will eat well and exercise.

Ill try and behave but as my better half would say I tend to slip up from time to time.

Brian I wish you well and thankyou for lifting my head and serving up hope and happiness for that I am in your debt.

Take care amigo.

Always a pleasure - never a chore!

4.5 years ago - I was where you are - and this group sorted me out - and well I am still here. 

Kind regards - Brian.