side effects

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on relugolix now for 10 days.  but the hot flushes  are  out of this world.  face  is burning.

is this normal?  i have mentioned in the past that i'm getting these flushes  EVERY 20 MINUTES NON STOP!!!  for 4 days now.

i have mentioned it to my  specilised nurse team.  the standard reply it's normal  for these side effects.   surely every 20 minutes is not normal!  

i can manage with a few but 45 in 10 hours!  

i really thinking of stopping this lunatic ride  i'm on  with this medication.  not on anything by the way.  

anyone  had so many flushes  like this?  any advise would  be kindly received.Pray

mike..

 

  • Hello Mike ( 

    Give it time - explore the options - yes it's a side effect and yes you've had it bad - one of the side effects of Prostate Cancer nearly killed me, so once you've had 10 days in hospital with this cancer then you can join me!! Joy.

    You've been advised by me Sage Tablets work for many people - have you tried them yet and given them a chance to get in your system? You also had advice about Medroxyprogesterone, have you spoken to your GP about this?

    Your body takes time to adjust to medication - and the changes they bring so if you are thinking of speaking to your GP - ask him about Calcium and Vitamin C Tablets as the Hormone therapy can weaken your bone structure - You are also at risk of growing a pair of "moobs" (I have a cracking pair of 38DDs Joy) so you might as well ask about medication - Tamoxifen too.

    i really thinking of stopping this lunatic ride  i'm on  with this medication. 

    The alternative isn't too great - I can assure you - since I have been a Community Champion I have been to 3 funerals for friends - 2 from this Community so you need to think very seriously about that statement.

    We are here to help you - I could be watching the football now or out with my mates for a beer - I do this because I want to help people get through what I am going through. You need to think long and hard and take advice.

    Best wishes - Brian.

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  • Mike,

    My good friend had your experience with the flushes on Orgyovix. He had some success in reducing them greatly with acupuncture (in the ears) ... maybe worth a try?

    David

  • Hi Brian,

     thanks for your reply.  burning face is  the major thing now,    non stop.  will it calm down?  

    re:Medroxyprgesterone. my gp as given me gabapentin, not recieved  it yet only 

    hopefully monday.  i believe the medrox one is not suitable for me.

    the advise i was given by a doctor over  the phone 111  was to stop it.

    mike

  • Hello Mike ( 

    I can't comment on medication once prescribed BUT - I would say Gabapentin can have it's own side effects so you need to stop drinking alcohol and once you start taking this medication follow the GP's instructions. I hope it works for you.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Hi mike3561

    I wasn't to bad the first time I was diognosed but my recent spread of my cancer (stage 4) has got me on two hormone treatments working side by side and the hot flushes have been absolutely uncontrollable, that is until csn nurse told me to try evening primrose  oil, quick trip down to tesco and purchased there own brand of tablets and take one each morning and an online sage tablet mid morning. 

    These have totally wiped out any hot flushes, worked for me 

    Take care and good luck what ever route you take

    Spud

    "you don't know how Strong you are,

    until being Strong is your only choice"

    Bob Marley quote 

  • Hi Mike ( ), I have been on HT for over 9 years although never experienced them every 20 minutes.  I have tried to see during my time if there is any pattern (or trigger).  The following are my thoughts/suspicions.  Perhaps others can add any ideas.
    I seem to get more flushes on hot days (or when I am already hot).  Alcohol may trigger them.  I am not aware of getting flushes when I am exercising (I walk and play tennis) and this may be an important factor.  I seem to wake in the night, need a wee and then have a hot flush when I get back to bed.
    In my case, the flushes aren’t in any way painful and as time has gone on, I am almost unaware when I have one, although sometimes in this heat I don’t know where to put myself.

    Give the meds a chance to work.

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.

  • i don't remember saying i was drinking alcohol!  i think you have me mixed up with someone else brian.  i don't  drink.  but thanks all the sameHandshake

  • God bless  you Spud.   i will try anything to wipe these out. 

    by the way, primrose oil?   in tablet form?  thought  it was liquid.

  • thank  you david,  as i'm new to all the side effects,  my face was burning like hell last night.  calmed down at the moment, might be because i haven't  taken my relugolix yet.     this  forum  seems the best place to go for advice.  9 years!  hope all is well   take care.

    mike

  • It's a capsule like you get with omega 3 in "Evening Primrose Oil"  though and if  search for the brand "Nature's Best" for sage tablets" 

    "Other sage tablets are available"

    Take care 

    Spud