on relugolix now for 10 days. but the hot flushes are out of this world. face is burning.
is this normal? i have mentioned in the past that i'm getting these flushes EVERY 20 MINUTES NON STOP!!! for 4 days now.
i have mentioned it to my specilised nurse team. the standard reply it's normal for these side effects. surely every 20 minutes is not normal!
i can manage with a few but 45 in 10 hours!
i really thinking of stopping this lunatic ride i'm on with this medication. not on anything by the way.
anyone had so many flushes like this? any advise would be kindly received.
mike..
Hello Mike (mike3561)
Give it time - explore the options - yes it's a side effect and yes you've had it bad - one of the side effects of Prostate Cancer nearly killed me, so once you've had 10 days in hospital with this cancer then you can join me!! .
You've been advised by me Sage Tablets work for many people - have you tried them yet and given them a chance to get in your system? You also had advice about Medroxyprogesterone, have you spoken to your GP about this?
Your body takes time to adjust to medication - and the changes they bring so if you are thinking of speaking to your GP - ask him about Calcium and Vitamin C Tablets as the Hormone therapy can weaken your bone structure - You are also at risk of growing a pair of "moobs" (I have a cracking pair of 38DDs ) so you might as well ask about medication - Tamoxifen too.
i really thinking of stopping this lunatic ride i'm on with this medication.
The alternative isn't too great - I can assure you - since I have been a Community Champion I have been to 3 funerals for friends - 2 from this Community so you need to think very seriously about that statement.
We are here to help you - I could be watching the football now or out with my mates for a beer - I do this because I want to help people get through what I am going through. You need to think long and hard and take advice.
Best wishes - Brian.

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Mike,
My good friend had your experience with the flushes on Orgyovix. He had some success in reducing them greatly with acupuncture (in the ears) ... maybe worth a try?
David
Hi Brian,
thanks for your reply. burning face is the major thing now, non stop. will it calm down?
re:Medroxyprgesterone. my gp as given me gabapentin, not recieved it yet only
hopefully monday. i believe the medrox one is not suitable for me.
the advise i was given by a doctor over the phone 111 was to stop it.
mike
Hello Mike (mike3561 )
I can't comment on medication once prescribed BUT - I would say Gabapentin can have it's own side effects so you need to stop drinking alcohol and once you start taking this medication follow the GP's instructions. I hope it works for you.
Best wishes - Brian.

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hi mike3561
I wasn't to bad the first time I was diognosed but my recent spread of my cancer (stage 4) has got me on two hormone treatments working side by side and the hot flushes have been absolutely uncontrollable, that is until csn nurse told me to try evening primrose oil, quick trip down to tesco and purchased there own brand of tablets and take one each morning and an online sage tablet mid morning.
These have totally wiped out any hot flushes, worked for me
Take care and good luck what ever route you take
Spud
"you don't know how Strong you are,
until being Strong is your only choice"
Bob Marley quote
Hi Mike (mike3561 ), I have been on HT for over 9 years although never experienced them every 20 minutes. I have tried to see during my time if there is any pattern (or trigger). The following are my thoughts/suspicions. Perhaps others can add any ideas.
I seem to get more flushes on hot days (or when I am already hot). Alcohol may trigger them. I am not aware of getting flushes when I am exercising (I walk and play tennis) and this may be an important factor. I seem to wake in the night, need a wee and then have a hot flush when I get back to bed.
In my case, the flushes aren’t in any way painful and as time has gone on, I am almost unaware when I have one, although sometimes in this heat I don’t know where to put myself.
Give the meds a chance to work.
Best wishes, David
Please remember that I am not medically trained and the above are my personal views.
thank you david, as i'm new to all the side effects, my face was burning like hell last night. calmed down at the moment, might be because i haven't taken my relugolix yet. this forum seems the best place to go for advice. 9 years! hope all is well take care.
mike
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007