My husband's raised PSA was an incidental finding when he went to his GP with another condition entirely. Once he had been referred to Urology, the surgery declined to do anything for him because, they said, he was now under the hospital. We ended up going private to resolve the original issue.
A year later, the GPs surfaced, out of the blue, with a detailed questionnaire and requests for urine and blood samples. This has resulted in his having duplicate blood tests, for Oncology and the GP, on two occasions.
The problem is that the blood tests show that my husband is slightly anaemic. Obviously Oncology are aware, but they are not concerned as this is an almost inevitable side effect, apparently, of Abiraterone and is not at a level where they would need to consider stopping his treatment.
The GP, however can find no obvious cause for the anaemia, has ordered a FIT test, which was clear, and is getting very exercised about it. .He has now ordered another blood test in an effort to find the cause of this inexplicable anaemia.
Does Oncology trump the GP in this case? Can we tell the GP to butt out? It almost feels as though the GP is afraid that my husband has cancer!
Hello ansteynomad
I hear what you are saying and understand your frustration as you have already had issues with your GP.
Earlier on in my personal journey urology at my hospital ran full bloods for a pre-op and two days later my GP practice asked for full bloods for my diabetic review - I just copied them into my hospital results and they were happy.
I think this is a problem we all have in that our GP practice look after the "basics" but being GP's they do not specialise in the connection between cancer/cancer medication and side effects. In my case I have had to sort my GP out and point out that my Hormone Therapy treatment has had a direct result on my HbA1c (blood sugar) results and agree on my treatment. They also missed a change in my eGFR (Kidney Function) putting "OK for this patient" on my records when it clearly wasn't.
It's taken almost 3 years but I now have a very good relationship with my GP practice BUT I have full access to my test results on the NHS app and I am a bit of a nerd and check all my figures.
I think in your case you might need a meeting with the practice manager to sort out "who does what".
Best wishes - Brian.

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Hi ansteynomad , I wouldn’t worry about having too many tests if the GP hasn’t really got a handle on it. Just remember that you are in control of any treatment, so if the GP eventually comes up with a reason then it’s your choice which way to go. I remember receiving my first FIT test after having my cancer diagnosis and asking my oncologist if it was necessary. Her reaction was to have any test going. Information is always better than ignorance.
Best wishes, David
Please remember that I am not medically trained and the above are my personal views.
I have a great relationship with my surgery. I asked for my regular (oncology) blood checks to be performed there as it is very local. They agreed and I just gave them the printed hospital 'shopping list' and they send off the samples.
On the FIT (poo test for bowlel cancer), I get these regularly - every 2 years. I am grateful for this monitoring and so far all good. One less thing to worry about!
David
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