49 years old, diagnosed with prostate cancer. Anyone in similar situation? All replies helpful.

  • 4 replies
  • 193 subscribers
  • 121 views

Just been diagnosed with Gleason 7 3+4 and PSA 3.1 Following consultant appointment I have currently chosen AS. Just wanting to know if there is anyone else in my situation that can share some advice. Did anyone else choose a different path? Also experiencing slight ED since biopsies and my diagnosis so wondering what options there are to help this. Keep myself in shape and don’t have any other health issues. 
I keep getting told at appointments it is uncommon at my age which is making advice on options to choose conflicting. Which is why I thought I would reach out to others that may have been in my position and can offer first hand experience. 
Thanks!

  • If you’re not on HT and you have ED then I would definitely as your doctor. Although you are young you shouldn’t dismiss it as something to do with age. We all suffer circulation issues and there are plenty of things that are available for ED even a MacMillan guide for advice somewhere. Someone will help in the morning I’m sure.

    if you’re anxious, and why shouldn’t you be, there’s plenty of advice for that including phone lines set up as talking therapies.

    Finding out your rights and available help is useful and best if you tale notes for later, not everything applies now.

    Active Surveillance is great but your anxieties could change all that. It’s best you know your choices but everything is at your feet, and depending what the future brings means you will be well prepared for everything.

    Take care

  • Hi  , sorry to find you here.

    I was also diagnosed at the age of 49, 3 years ago, but with much worse stats than you, so AS was never an option. Your numbers are very low so I fully understand your AS choice. As Mr U said, you haven't started active treatment, so best consult your doctor about the ED, the stress of cancer diagnosis doesn't really help that either.

    Happy to answer any questions I can help with, click on my profile for full details of my situation.

    G

  • Good morning  

    It sounds as if you have an embarrassment of riches in the treatment department and time to plan.

    This is a good page to look at - https://prostatecanceruk.org/prostate-information-and-support/treatments?category= - because  it allows you to select the stage of cancer  you have and which treatments might be appropriate for that.

    You have plenty of time to do your homework and then select the next stage.

    Steve

    Changed, but not diminished.
  • Good Morning Leroy ( 

    A warm welcome to the club you didn't wish to join, I am sorry to find you here.

    Your profile (Low PSA and Low Gleason 7 (3+4)) is ideal for AS. If this is your path of choice and you are happy with it, and don't suffer from anxiety I wish you well moving forward. Here's a link to our advice:

    Aactive-surveillance-and-watchful-waiting-for-prostate-cancer.

    Three points I would make are:

    * Yes, do contact your GP or Cancer Team about the ED - As you are not on any treatment this isn't normal.

    * As you have a cancer diagnosis make sure you have your regular PSA Tests and check the results.

    * As you are a young 49 (and if you live in England) ask you GP for a form FP92A - As you have a cancer diagnosis you are entitled to free prescriptions.

    Do feel free to ask us any questions, there's a wealth os knowledge on the Community.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.