Mild Anaemia whilst on Post Radiotherapy Hormone treatment

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Hi All

I completed my 20 days Radiotherapy at the beginning of December and am currently having 3 monthly PROSTAP injections as my ongoing treatment.

Ive just been diagnosed as Slightly Anaemic, which the HT jabs can cause. Has anyone else had this too and if so, do you experience extreme tiredness and aching pains/ cramps in your legs at night? 

cheers

Mike 

  • All of the above(except the cramps) are quite normal during the process and since I’ve had cancer and HT so I fear it’s nothing but something else to contend with as part and parcel of this PC nightmare.

    I hope you’re worrying over nothing but if you bloods tell the sort of too much anemia then there will be extra treatment to give you body a boost. Your team will keep a close eye on your bloods.

    Take care

  • Hello Mikey,

    I had been on Prostap for over a year when I started getting new side effects. It was (eventually) discovered that my Vitamin B12 levels were way below the deficiency levels.  I was initially told that my reading was "borderline" and to buy some supplement tablets. I complained about this (having found the actual reading) and was then given a two week course of B12 injections and started on 3 monthly B12 jabs.  I have only had two B12 blood tests, the first was low - the second was a couple of days after my first 3 monthly jab and (surprise, surprise !!) was off the  top end of the scale. 

    I am not at all happy with the way that this is being dealt with by my GP. I am now going Private to get another B12 test done - the only B12 test that the NHS will offer me is widely recognised as not being very accurate. I can only get the more accurate test on the NHS if I am pregnant (difficult !) or a recreational Nitrous Oxide sniffer (should I take this up ?). I am having the private test next week - a few days before my next 3 monthly jab, when my B12 should (????) be lowish. We shall see.

    The NHS diagnosis and treatment of B12 deficiency does appear to be a bit hit or miss across the board. The NICE figure for deficiency is 180.........but NICE also says that the figure produced by your local testing lab can be used instead (145 round here).   MUCH higher in the USA of course.

    If you are diagnosed with B12 deficiency, I would suggest you do a lot of research on this subject. NICE, BMJ and the  anaemia charities are good places to start.