We've just received the letter following my husband's ten minute appointment with his CNS last week.
Apparently it was a telephone appointment. No it wasn't. All appointments have been face to face. Also, the lesion in his pelvis is now on the right, after 10 months of being on the left and after being T4 from diagnosis, he is now T3a!
You couldn't make this stuff up!
Hello ansteynomad
Cracking hospital, not only can they move lesions, misinterpret appointments, they can move you from incurable to curable.
The NHS working miracles everyday! You are on a roll .
Best wishes - Brian. .

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Hi Ansteynomad, I feel your frustration! I know you have had lots of problems with this particular hospital Trust. Is it possible to move to another Trust?
I think you have been keeping a complete diary of events? I would suggest sending the details to the Care Quality Commission - if not just for your own benefit but to help prevent this happening for patients following you.
best wishes
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