We've just received the letter following my husband's ten minute appointment with his CNS last week.
Apparently it was a telephone appointment. No it wasn't. All appointments have been face to face. Also, the lesion in his pelvis is now on the right, after 10 months of being on the left and after being T4 from diagnosis, he is now T3a!
You couldn't make this stuff up!
Hello ansteynomad
Cracking hospital, not only can they move lesions, misinterpret appointments, they can move you from incurable to curable.
The NHS working miracles everyday! You are on a roll .
Best wishes - Brian. .

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Hi Ansteynomad, I feel your frustration! I know you have had lots of problems with this particular hospital Trust. Is it possible to move to another Trust?
I think you have been keeping a complete diary of events? I would suggest sending the details to the Care Quality Commission - if not just for your own benefit but to help prevent this happening for patients following you.
best wishes
Further to this I would also submit a Subject Access request to get copies of your medical information just to check that they haven't mixed up your records at some point with someone elses.
Sounds a bit familiar ansteynomad . I’ve had a letter with the wrong name on it, appointments which didn’t match what was on their screen when I arrived and an appointment to discuss the MRI results before the MRI had actually happened. I took one letter to the ward in a different hospital with a pre-admission appointment which didn’t feel right, to be met with blank faces and told I wasn’t on their list…! That was probably 50% of the letters I had received up to transfer to oncology. The clinical staff have always been wonderful, some of the admin less so. You do have to be a bit proactive at times…
On Monday I waited all day for my oncology 3 monthly phone call. At 4pm I rang and was told the clinic had been cancelled and they had forgotten to tell me. I was put onto the Tuesday list and duly called at the correct time. I had a bit of a moan and explained that anxiety and stress levels do go up. I was told that the admin person was normally very good, so I can accept that it was probably a one off and everyone makes mistakes. In my view the medics and nursing staff seem to be really good but the system is badly let down by admin inefficiency and incompetence. Complaining to PALS seems a good route, but I do worry about the cost of requesting a subject access report. I have a sneaky feeling that the more requests that are made, the larger the admin function will grow and by contrast funds will be cut from frontline services. I am not suggesting that we don't make subject access requests when justified, but over using the system has its cost.
Best wishes, David
Please remember that I am not medically trained and the above are my personal views.
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