Just diagnosed. Confused re treatment.

  • 3 replies
  • 187 subscribers
  • 44 views

Hi everyone,

Not sure how this works just yet, so apologies if I make mistakes, 64 years old, fairly fit, no health issues and no previous medical ops etc. 

PSA was 4.7 in December and then after a 6 week retest 5.1 had an mri which showed something and after trans perineal biopsy ( not pleasant! Still tender there after 7 weeks) further PET CT scan, end result 3+4 contained but near to the outer covering of the prostate but no spread beyond. 

Saw the surgeon on Tuesday and although I was already of a mindset it was cancer, when he confirmed it still feels like being hit by a train, as he’s a surgeon he’s inclined to steer me towards surgery although he did say that hormone therapy followed by radiotherapy is just as effective, and of course less invasive, and I’m terrified of the post op side effects of ED and incontinence. 

I guess I’m looking for some direction from those who’ve been through all of this as I’m so confused as to which way to go, I’ve read all the leaflets given to me by the specialist nurse and really over burdened and overloaded with information. 

Sorry for the length of this post, but I’m glad to have found this group. 

cheers. J 

  • Hello  

    A warm welcome to the group, although I am so sorry to find you joining us. 

    With figures like those I would think you could have surgery, hormone and radiotherapy or brachytherapy.

    The side effects for each treatment are different and affect us all differently so my advice is get a pen and paper (or a spreadsheet) and list the pros and cons of each treatment as they would affect both you and any partner.

    Use trusted sources for your research, Prostate Cancer UK, Cancer Research UK and Macmillan (not Dr Google!). I will start you off with 4 links:

    Prostatectomy for prostate cancer.

    Hormonal therapy for prostate cancer.   

    Radiotherapy for prostate cancer.

    Brachytherapy for prostate cancer.

    I have added brachytherapy as although it's not offered in every area if you are suitable for it you are entitled to it.

    Feel free to ask any questions, nothing is too trivial.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Firstly, That is not a long post.

    This is a couples disease and the ED is coming at you sometime soon. Hormone-therapy is great to stop the cancer in its tracks but you and your partner will need to figure more creative ways of sexual fulfilment. However saying that there are plenty of medicines and scaffold that can help should you need any.

    But seriously. More information from you is good. You can put it on your profile (hiding under in plain sight top left of the page as a green roundel with an image of a sofa in it).

    HT is ok, I’ve been on it 3.5 years and I’ve been stage 4 since diagnosis. My PSA is over seven-hundred so I’m no use to you to talk about surgery or radiotherapy. Sorry.

    But Millibob will be along soon I’ve no doubt. He will fill you in.

    Just keep asking questions.

    Take care

  • Hi Jbat

    Ok ,so you've already had some good answers but I'll just add that I was similar to you IE, near the gland edge and I went for RT simply cos didn't want a major op and potential for ED issues afterwards.

    Do look at both treatments and consider everything carefully.

    Best wishes 

    Steve