To have or have not

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We finally have an appointment next week at Christie’s in Oldham with oncologist consultant. 
Our question is, after seeing urologist after the routine tests, he said we would prob be offered surgery but hadn’t had the mdt meeting yet, so he would see us next week. When I tried to get the appointment nobody seemed to know anything about it. So, after talking to countless people in different departments and hospitals, a nurse in urology said she would see us.

to cut a long story short, she said he wouldn’t be offered surgery or hormone treatment but would prob go straight to radiotherapy. The reason being he has recently been diagnosed with mild cognitive impairment and ht may make it worse. I have read that it would only get worse whilst having the treatment and then slowly get back to what it was.

when we see the oncologist, should we insist on the ht or has anybody come across this dilemma before. We are willing to work through the increase in his cognitive impairment if it’s temporary if it means he can have ht if that is going to improve his chances of a cure. 
I know we should wait and see what the oncologist says, but information of any kind is power in my mind.

regards to everyone in this boat

cheryl

  • Hi Cabb

    You don't mention the stats apart from PSA , if Gleeson low and smallish tumour confined to the gland then HT mat not be necessary so do check the stats and come back here if U have them

    Best wishes 

    Steve

  • Hi, sorry, just updated profile, but all we have is Gleason 7 4+3. T3. 

  • Hello Cheryl ( 

    He's a T3 with the higher Gleason 7 (4+3)but a lowish PSA at 15.

    I would be tempted with Radiotherapy only, however you need the Consultant's opinion as HT affects us all differently.  If he has 6 months of HT and the Radiotherapy around month 3/4 the HT should have put the cancer to sleep, the Radiotherapy should kill it off for good.

    If the Oncologist is who I think it will be then you are in good hands.

    Best wishes - Brian.

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  • Ok, so all not too bad but looks like has just escaped the gland so probably some HT would be worth it 

    I would have thought once stopped side effects should go away but there are people on here who knows more about HT so hopefully they will post

    All the best 

    Steve 

  • Hi Cheryl, my husband was Gleason 4+3 and T3a . In the first 3 months of ht he aged 10 years. He stuck the ht for 18 months. It took at least 6 months after stopping the ht before I ‘got my husband back’ so to speak. Obviously, different people tolerate the ht better than he did and some are probably worse. I would strongly advise discussing this with your consultant. Although the specialist nurses have specialist nursing knowledge they are not medical specialists ( ie qualified doctors who have achieved a high level of expertise, experience and knowledge). 

  • From my personal experience, urologists aren't oncologists, I would wait and see what the oncologist advises