12 months after my prostatectomy and without hopefully sounding too dramatic, my whole life seems to be falling apart.
It didn't start too well when it took my GP's over a year to do my psa, with the same old reasoning for not carrying out the test, there are too many false positives. Then my op was cancelled as I was literally getting ready for theatre as a result of an error by the preop nurse.
Op went well. 10 days but after op I got a letter which contained information that perineural invasion had been found in the core biopsies. I had not been made aware of this. All research I read suggested that the presence of perineural invasion made nerve sparing surgery more risky but when I mentioned this to my nurse she said im sure the doctor knew what he was doing, she refused to arrange for an earluer appointment. 3 and 6 months psa, undetectable. Gp took bloods for psa at 8 months , detectable at 0.04. At 12 months psa 0.07. Not huge figures but a pattern upwards
At 8 months lost all bladder control, nothing changed. Specialist community nurse way of dealing with this, send me out another copy of the pelvic floor exercise sheet. Hospiral CNS contacted consultant who arranged a flexible cisoscopy, which showed a bladder diverticulum. I wasn't advice of any other issues. I saw the consultant to discuss the results. The letter from the junior doctor who saw me had added a small stricture at the annastomosis, he had not mentioned this to me. So the consultand and I laughed about it being a typo error. To get clarification, he rang the sunior doctor who said he could remember me.I was one of many on a clinic, and he must have had many more clinics since he saw me. He confirmed the presence of a stricture from his recollection of the procedure. The consultant decided to carry out a rigid systoscopy , which I had very quickly and which of course showed no structure. Spinal anesthesia and sedation because of the typo.
How can I trust this man. Got me as far as the theatre doors before cancelling up. Not accessible when I needed to speak to him, probably because of the specialist nurse, and unnecessary investigations because of typo.
Curative op with signs of reccurence after 8 months. Still incontinent.
I an struggling.
