Well wasn’t expecting that

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So after being diagnosed back in October with a T3A PSA 84 and Gleason of 9 , been through hell as we all have , supported by an amazing wife and support groups. Got my head straight and on HT to shrink the bugger , plan was to shrink operate and cure as it had only just broke the surface. Then today I get a phone call from the surgeon who I should have seen today but they moved it to 25rh to be told he wants to get me on waiting list asap. All his so far , PSA now dropped to 13.4 , all good, flow rate hugely better when urinating and nurses tell me it’s all good when I get my jabs, he now informs me it is curable and I have 4-8 years…. Back to square one mentally right now and just having started a new job not great…..

  • Hello  

    Interesting post.  My comments (not Macmillan official)

    * How can they give your 4 - 8 years if it's curable?  Sorry - does not compute!  Curable - dictionary definition - "able to be cured".

    * I am a T3A, PSA of 182 and Gleason 9 (5+4). My urologist said no surgery - it's too risky but let's get you sorted with oncology and we will have you on a "curative pathway". Yes I am still having issues, but all is well.

    * I can't go against medical advice but T3A and Gleason 9 with a high PSA - is surgery the best option?

    As I said only my personal thoughts - I know you need to be mentally right and I don't want to upset the apple cart, and I know everyone is different - have you spoken to an oncologist?

    I hope my ramblings help - good luck with your chosen path.

    Best wishes - Brian.

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  • Seems like there is good reason to believe that you are curable if there’s no new information to the contrary.

    But, assuming the specialist is getting on with the surgery asap, that can’t be a bad thing.

    I’m as confused as you.

    If you are ok with the surgery you are in good hands.

    Good luck

  • Hi there

    As Brian has already said an amazing thing for the surgeon to say giving u a time span.

    Also looks like you are having surgery but I could be wrong there.

    Because it has broken through and the PSA is quite high have they talked about a bone scan.

    It's ok , looking at your profile I see you had a Pet scan , I believe better than bone scan

    Best wishes 

    Steve 

  • Yes a PET scan will find and cancer cell anywhere. A bone scan will only see into the bones.

    Good luck