Stopping HT early?

  • 4 replies
  • 181 subscribers
  • 66 views

I’ve been on HT (Decapeptyl) for 30 months. I have my final injection in July. i’ve asked about foregoing the final injection (I want to get my life back).  I’ve tried but I can not find a way to engage with the Oncologist. The nurse says that “its your decision”. I’ve asked if 30 months is any different (in terms of risk) compared to 36 months but i don't get any answers.

  • Hi  Coltrane.

    I have read your profile but a couple of questions, can't see any PSA figures, was your Gleeson 7 or ,9?

    I presume cancer contained in the gland?

    I don't think anyone really knows if it should be  30 or 36 months but does depend on stats.

    If it was me and I was getting fed up with side effects I would probably stop but please remember that's just my opinion.

    But I would look at all the stats including current PSA figures.

    Also see what others say

    Best wishes 

    Steve 

  • My understanding is that the general guideline is "the more aggressive the cancer the longer the duration".

    Given that my own treatment, as a Gleason 9 diagnosis is also for 36 months, I would suspect that yours is similar.

    Reading the NICE guidelines, and other papers, I will hang on for the full period. If it is suggested I have less I will be concerned.

    Steve

    Changed, but not diminished.
  • Hello  

    I am also a Gleason 9 and told 36 months - I am with Steve ( here - it's an aggressive cancer, the oncologist said 36 months - I would stick with the 36 months (if you read my profile I have had a biochemical relapse and am back on another 9 months HT).

    You mention 2 side effects in your profile:

    * Hot Flushes - have you tried Sage Tablets ? - they cured mine within a fortnight.

    * Weight Gain - I put on 3.5 stone during HT - my oncologist has put me on Ozempic the weight loss drug -it costs nothing to ask!

    I hope this helps. Happy to answer any questions.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Hi Brian

    yes, tried Sage and now on medroxyprogesterone and that doesn’t make that much difference. The flushes are worse at night - i still wake up several times a night. I’ve put on 2 stone and this has effected my attempts at resistance and mobility training. The extra weight puts pressure on my knees. I understand what you say and I sorry that you’ve had a relapse.