Radiotherapy side effects

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Hi everyone Relaxed️ 

I wonder if anyone can give an insight into their side effects/experience with their radiotherapy treatment please? 

Im very worried about my husbands 'side effects' from his recent 20 sessions of RT.

He had a radical prostatectomy nearly 2yrs ago but then his PSA started rising. He is now on HT and just completed 20 rounds of RT. 

The RT was going quite smoothly until maybe the last 8 days. He started experiencing diahorrea and what I can described are like 'contractions sounds' (almost like a woman in labour trying  to push). Watery stools, unable to wait and having to go to the toilet 'instantly '.

While we've been told that all these symptons are normal after effects and will decrease im worried that they're not going to get better.

Hes up every hour, day and night to go to the toilet.  Immodium doesn't help really. 

I wonder if anyone can put my mind at rest ....hes not been out of the house for 10 days as he needs to be near at toilet! 

  • All these side effects are unfortunately par for the course.  They are difficult and upsetting but they will pass. Talk to your care team  , they know stuff. Best Wishes. 

  • Hello  

    Thank you for the update. Sadly your husband looks to have a very bad dose of the RT side effects.

    As  said in the post above, they will get better given time. Make sure you keep in contact with your team as they can help with medication.

    Best wishes - Brian.

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  • I have had radiotherapy and did NOT get symptoms like this.

    I have a good friend who went through the same process as your husband and he did.

    For sometime it kept him at home. After a time it began to settle down, until the problem was only occurring in the afternoon. Eventually the problem became intermittent, and has now become occasional. That has been for a period slightly over 3 months after the RT

    It seems to me that the probability of the symptoms receding over time is quite high. That means that a way of managing the problem is necessary.

    Possibly the sort of journal needed to give a person insight into IBS might do something to work out a pattern and identify any trigger that sets it off. Here is a link to one such journal page from "Essentials of IBS".

    https://www.essentialsofibs.com/content/dam/essentialsofibs/pdf/IBS-Patient-Diary.pdf

    I am not recommending this directly, but as a place to start. You may be able to see if there are any improvements you can make while you wait.

    I am hoping that this is allowed by the authorities, because my wife used something like this to understand her IBS.

    I tried something similar to try and find what was setting off severe back pain a year ago. It was less successful because "breathing" was not a helpful thought.

    Keep going, there will be a recovery. Patience is hard to learn when you are suffering.

    Steve

    Changed, but not diminished.