The journey and what treatment?!

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I am 60 years old and diagnosed last week. My initial PSA was 23.3 and I was obviously referred to Urology.

My MRI returned a prostate volume of 68mls and a PSA density of 0.34. A 3cm lesion crossing the mid line in the transition zone causing a mild bulge in the capsule with possible extracapsular disease. All was classified as T3a, PI-RADS5. The biopsy results returned a Gleason Score of 4+3 and grade 3. The cancer found was Adenocarcinoma.

Due to the T3a I am awaiting a PET Scan (due to be completed on the 23rd December) to determine any spread.

I suppose the question is what treatment, I do feel that the options haven't as yet really been fully explained, I think they are waiting for the PET Scan results. I have tried to do some research but the answers do appear to be contradicting depending on where you look. There seems to be a lot of USA related material out there but not much that is UK based.

I would be grateful if anybody could point me in the right direction.

Regards

Graeme

  • Hi Graeme and welcome 

    I always reckon that once potentially broken through then HT and RT best bet.

    HT to quieten it down and RT to finnish it off.

    Hopefully u can have a meeting soon after the pet scan and you can get started on the HT initially.

    All the best 

    Steve 

    Any other questions please ask

  • Don’t look online. You’re best to wait and ask the medics or ask here. There’s lots of people that’s had the same as you that can tell you exactly what’s in store.

    The PET scan will help ascertain if the cancers contained in the prostate and that’s very diagnostic to treatment.

    Contained = radiotherapy or surgery both with HT

    Not contained =  chemo pills, chemo, triplet therapy,

                                radiotherapy, trails and on and on.

    Basically everything could be thrown at you. The proviso is your own health, co-morbidities and of course the main issue is you. What do you want or not want.

    So does that help?

    It’s a real big change to you and lots of acronyms too.

    Don’t panic is the best advice. Ask us on the site for anything. When you get more info, update us, we can help anytime.

    Good luck

  • Hi  welcome to our little band of brothers (and sisters).

    I’ve looked at your case and it is very similar to mine. To give you some background information, I suggest you take a look at my bio.  I had brachytherapy boost, which has an impressive track record of cure rates. However, your consultant will be able to advise you about your suitability for this pathway, should you want to pursue it. 

    You are starting on quite a rollercoaster ride, but it does appear to have been caught relatively early. Good luck and ask questions about any or all pathways - you will find that we are a cheerful and approachable bunch.  AW

  • Hi   I think options for treatment will follow once all the tests have been completed, the extent of the cancer has been determined and your MDT specialists have had their meeting. As  says there are quite a range of treatments available, from the tried and tested with 5-and 10-year stats, to the relatively newer procedures and trials with shorter results periods. You may be limited in which to consider dependant on how contained the cells are, which treatments your cancer centre can offer, your ability to move centres or ‘go private’ and how they see your general level of fitness for each.

    In the meantime it’s useful to find out what type of radiotherapy is available for PCa locally, and whether robotic surgery is available. The NICE website PCa articles are also a good read, if you haven’t done that already. Some treatments have almost identical results, so possible short- and long-term side effects of those and how they might affect you personally are also a consideration. Lots of info to work through…! Good luck.

  • Hello Graeme ( 

    Another welcome to the group from me, although I am so sorry to find you joining us. 

    There seems to be a lot of USA related material out there but not much that is UK based.

    Yes, there is. If you want to do research in the UK stick to trusted sites (not Dr Google) such as Cancer Research UK, Prostate Cancer UK and Macmillan.

    Like you I am a T3a (a T3aN0M0) and i think I will wait until the results of the PET Scan are known before commenting on treatment options. So far all your results are fairly good (if that's possible with cancer) and looks very treatable.

    Good luck on 23 December and i wish you well with the results of the scan.

    Do ask any questions, nothing is too trivial.

    Best wishes - Brian.

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  • Hi Grundo,

    Thank you for the response.

    I think my question on treatment may have been a bit premature due to not having had the PET Scan yet but I really appreciate your thoughts.

    I'm in agreement re the treatment if the cancer has left the capsule as I don't believe surgery would possibly be an available option.

    Regards

    Graeme

  • Hi Mr U,

    Thank you for your comments, it's so reassuring that, sadly, there is lots of people here with the same issue.

    I will re-post once I have the scan results.

    Thank you

    Graeme 

  • Hi Alpine Wanderer,

    Thank you for your kind welcome and replying.

    I will take a look at your bio.

    Best wishes

    Graeme

  • Hi Amplitude,

    Thank you for the reply.

    I think I may have been a little premature with the question of treatment as I haven't had the PET scan yet. I will repost oncei have those result.

    Thank you for taking the time though to reply.

    Regards

    Graeme

  • Hi Millibob,

    Thank you for the warm welcome.

    Once I've had the PET scan results i will re-post.

    Graeme