New member PSA 25 & fast tracked to urology...scary!

Hi Megamilo872f0b , I can’t comment on the ALP but your raised PSA would be a concern.  Your team are obviously on the case and an MRI will tell you enough to diagnose what is going on.  Good luck with the scan results, which I hope you get quickly.  Please come back with an update or ask any questions.

Firstly I’m glad you’ve found the forum and I know you’ll find support and some answers.

so you e had some info. The worries you have are natural and the questions about what next are all too common.

Dont panic, Dont Google too much, Dont stop asking questions.

Until there’s more tests and data from those tests you (and we) are in the dark. So the only thing to do it wait. Yes, the waiting is excruciatingly difficult but do it you will.

Hormone treatment might be the first and most common treatment if that’s what you’re clinicians agree on.

then there’ll be more tests. More waiting and worrying. But all along there’s no reason to be anything but positive when you can which will help you endure the period before the diagnosis.

I can’t help you with the waiting but I’d advise you to seriously talk to someone, anyone. Family. Friends, support groups and counsellors. If you can keep a cool head you’ll deal with everything better.

Stay in touch and good luck.

Have a look at the timeline on my profile. Timings may differ but the process will in all likelihood be along the same lines. Good luck with it all, it’s not nearly as bad as it all seems at outset!

Thank you, I had my first MRI scan this morning so the process steps in your timeline are very interesting.

Thanks to everyone for the good wishes.

Hope you managed to avoid scratching your nose! Best wishes with it all.   

I managed to only scratch it once during one of the quiet bits between scans.

I spent some of my working life in noisy industrial environments so was able to ignore the noise of the MRI but I bet some people really struggle with it.

I had an MRI scan on Saturday and biopsy yesterday, now waiting for a bone scan on Monday and then a CT scan.

The consultant told me I had prostate cancer and showed me 3 areas of concern on my prostate and she took core from 2 of them but she didnt mention any spread to my bones.

Last night I saw my MRI scan report on the NHS APP and I wish I had seen it so I could have asked questions.

1. I'm so worried now that I didnt sleep last night, I need someone to explain this to me it as it looks really bad to me, can I hope for a few more years?
2. Name of Procedure and Technique: MRI bi parametric prostate.
   Comparison: None
   Findings: Volume: 70cc
   PSAD : 0.36 ng/mL/cc
   Transitional zone: Benign hypertrophy of the prostate with
   heterogenous nodular changes within the transitional zone
   (PI-RADS 2). Indentation of the median lobe of prostate into
   the neck of bladder.
   Peripheral Zone: There is a large focus of abnormal signal
   seen in the left peripheral zone occupying almost the entire
   left lobe from the base to apex and measures 3.2 x 1.9 cm.
   Abnormal signal also seen in the subcapsular aspect of the
   right posteromedial and posterolateral segment at the level
   of mid body measuring 1.7 cm.
   Seminal vesicles: Extension into the left seminal vesicle.
   Extracapsular extension: Evidence of extracapsular extension
   on the left.
   Bladder: Normal
   Lymph nodes: 9 mm left external iliac lymph node that is
   indeterminate.
   Bones: Abnormal signal in the left acetabulum extending into
   the ischial tuberosity and left superior pubic arch..
   Conclusion/recommendations: Radiological evidence of
   significant malignancy seen with bony metastasis and
   indeterminate left external iliac lymph node.
   This can be staged as T3c M1.
   MEDICA RED FLAG

Hello Megamilo872f0b 

Thank you for your post - first off Prostate Cancer is a very treatable cancer and 98% of men with a PCa diagnosis die WITH it not OF it so try not to worry too much. (I know it's easy for me to say).

You don't yet have a full diagnosis and you need to wait for the biopsy and bone scan results before you know just what you are dealing with. At this point I would suggest you stay well away from Dr Google.

The MRI scan tells you there is cancer in the prostate and seminal vesicles but the scan of the lymph nodes is inconclusive (these are slightly enlarged)

The provisional grading of T3cM1 is interesting as T3 is normally graded a or b (See attached link).

Staging-and-grading-of-prostate-cancer

Medica Red Flag - simply means that cancer has been found.

Once the results from the biopsy and bone and CT scans are known, your team will hold an MDT meeting, decide on a treatment plan and you will be called in to be told the results.

I hope the above helps - it's natural to worry and have anxiety and I would advise you to contact our Support Line on 0808 808 00 00 (8am to 8pm 7 days a week) for any extra support you need.

Best wishes - Brian.

Hi Megamilo872f0b thanks for the update.  Results so far are not conclusive but indicate local advanced prostate cancer although the stage 3c is rather odd (not sure that exists), so quite what the medic was saying is a little unknown.  The biopsy will confirm how aggressive the PCa is and where it has spread around the prostate.  The bone scan will show if any PCa has spread into your bones.  I can understand your concern as I had a fairly similar diagnosis just over 8 years ago.  Treatments have improved even since I started and survival rates are really good as PCa is normally very slow growing (even the aggressive ones).  Once you get the results, please let us know and we can help you through this.  It will get easier I promise you.

Thank you so much for taking the to reply, your explanation and that of Millibob have made me feel so much better.