Awaiting biopsy results tomorrow - questions?

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Hi

Firstly, finding this community and reading the very helpful comments is very reassuring. 

My profile contains my MRI results, but I wanted to ask here of others who have already had a biopsy and been given results and treatment options, what questions should I ask at tomorrow’s results meeting? What did you feel afterwards you wished you’d asked? 

I gused I have the opportunity to follow up afterwards anyway, but I’m now keen to know what different options may exist, though I have a lot of trust in my team. 

  • Hi Echo and welcome 

    Ok, T3 so just outside the gland, hopefully biopsy results will show a lowish Gleeson 6 or 7

    Because just out the gland u need to decide on treatment, my feeling is when T3, probably better off with Radiotherapy and HT.

    The best thing is to ask when HT can start to stop it in its tracks.

    Good luck tomorrow and please remember just my opinion when I am saying Radiotherapy.

    Best wishes 

    Steve 

  • Hello  

    A warm welcome to the group although I am so sorry to find you joining us. 

    A low initial PSA but a T3a so personally I would be looking for the Gleason Score and asking about a bone scan - just to check the little sods haven't gone "walkabout". At this point I would be keeping my options open and if you trust your team (and I trust mine and think they are amazing, and I am a T3a) be asking for their opinions.

    Here's a long list of questions as you may want to add some to your list - but questions are all personal:

    Questions-to-ask-your-healthcare-team.

    Remember, you have a low initial PSA so you have time to consider your options.

    I wish you well tomorrow - do let us know how you get on.

    Best wishes - Brian

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  • Thank you  and  for replying

    I was due to have my results a week ago, but they were postponed until yesterday, giving my wife & me an additional week agonising over results.

    They're now in, and surgery is being advocated, given my age, the fact that radiotherapy and hormone treatment can be used as a backstop should it return. 

    Lots of questions, and potential future outcomes, but we can only face each step at a time, and I've been referred, before surgery, for a PMSA PET scan first. I know this is thorough, and if available should be advised. But I can't worrying about what else they might find.

    Also concerned about the side effects and discomfort with the prostatectomy. Although I've been provided lots of information for both treatment options, I would love to hear from people who have been through surgery.

    I think there's a realisation also that prostate cancer isn't just something you get over, but you tend to live with and manage for the rest of your life. Of course there are many varying outcomes, and many are very positive and easier to live with than others. But coming to terms with something permanent is of course harder than just getting over a cold, or broken leg.

  • Hi Echo 

    In my mind that would be the main reason for going for surgery , Radiotherapy still an option if cancer returns.

    I presume that they have now given your Gleeson rating, hopefully lowish .

    It's good to have the PET scan just in case but with your PSA being low unlikely to have spread.

    Let's hope u can have the scan soon and surgery soon after

    Best wishes 

    Steve 

  • Hi Steve

    yes, Gleason is 4+3 so midway really.  Fairly aggressive but they want to operate before Christmas.  As many people are saying, it’s the waiting that’s the worst thing.  

    Thanks for the reply.  

  • Ok so 4+3 not  too bad, good news if they do the op before Christmas.

    Hope all goes well 

    Best wishes

    Steve 

  • Hi Echo

    i have gleeson 4+3 anda low PDA of 6.2 but have been advised to have radical prostate surgery robotic as the best way to get rid of cancer with 2 areas affected. The stress of worry about the after effexts in terms of incontinevce and potency is putting me to the point of not continuing or opt for HIFU or other treatments ..its so difficult 

  • Hi J

    Not sure y they say that surgery the best way to get rid of it as there are Def other options, possibly u saw a surgeon Thinking

    Gleeson and PSA not too bad, i assume contained in the gland, 

    Steve