Our journey continues....update - advanced metastatic PC

Hello Polly (will always think of you being called that!)

We are just behind you, with Apalutamide to be started imminently. Our oncologist - 2nd - meeting is a couple of weeks away, when we will get the results of a second (Fdg tracer this time) Pet scan, as the PSMA one failed to show up anything....naturally very concerned this may reveal a spread. However treatment has started (PSA now 0.2)..like you I am hoping that treatment side effects will be tolerable and still allow a good quality of life,

All the best to you both, C & S

I should really sign off my posts as "Claire".....good luck for the scan! all the best to you guys

I like the anonymity - we haven't shared our 'predicament' with many people, although this is a bit of a strain at times. With no symptoms, I respect his decision as he doesn't want to be defined by this disease and keep living as normally as possible for as long as he can. This lovely group is invaluable for its support and knowledge isn't it?

You have everyone’s support with the safety of anonymity as you say, but you should feel free to shout out any of you worries for you or your OH anytime to either ask or just blow up. We all fear the future sometimes and we all cry. But the support I get from here keeps me more normal.

Use this forum as you wish, as we do too, and realise you’re never alone.

good luck x 2

I truly wish you all the best for the future. I was diagnosed October 2021 with adv pc. Since then I have been on a treatment of Aberaterone with prednisone and quarterlly Prostrape  injections. My main side effects have mild tiredness and a loss of muscle strength . I now go to the gym 2 times weekly and do a lot of weights to build up my muscles . In the last few months my Medical team have told me that I am now in remission but stay on my medication to keep any cancer cells at bay. Hope this helps in a small way.

 Brizee that's amazing that you have responded well to the treatment, it is really good to hear. We are both feeling positive and hopeful......all the very best

Great news! Well done!

Hi poly was wondering how your husband is dealing with work. I’m 56 and thinking about going back which i probably lean to but considering time ahead . Hope you and your husband have many years together 

Hello Polly,

wishing you and family all the very best.

Hello, Paul took 6 weeks off following diagnosis, then went back 3 days a week, then 4 days, now back full time. He doesnt have a physical job a such but he is coping well.....his work place is really supportive and he has adjustments in place. Paul will likely look into early retirement over the couple of years. I wish you all the very best️