Dads cancer

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Hello everyone 

my dads finished his radio therapy a month ago now 

for Gleason stage 9 prostate, he’s had one course of hormones and he’s due his second in a few weeks 

he also has to have his first PSA blood test since his treatment started and a follow up call from his oncologist in a few weeks 

I suppose I’m just worried in case it hadn’t worked 

I’m not sure what happens from now on 

we haven’t really been told the procedure after the radiotherapy finished 

I know his PSA level may not be good as it takes a while to settle, but any help advise or reassurance is very welcome 

they did say he was being treated as curable, but I’m just getting a bit worried again as to what the consultant will say 

many thanks 

best wishes to you all 

Lesley 

  • Lesley ( )  after the RT, your dad will have regular PSA checks to see how effective it has been. Remember that the RT goes on working for many months, so don’t expect it to happen immediately.  At this stage, there isn’t anything to worry about, although generally just before you get results it is hard not to be anxious.  Remember he is on a curative pathway.

    Is your dad still on the Tamsulosin?

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.

  • I’m not experienced in radiotherapy but my pal has had a declining PSA after his radiotherapy for just over a year. So there is a reason for cheer for long after the sessions stop.

    The PSA is a fickle friend and not to be trusted all the time. Yes it’s my best indicator of my health but my clinicians often discount it for more accurate accounts of my cancer, like scans etc.

    Obviously you will need new data to examine what’s really going on inside your Dad which takes time, and you will be worried and have questions to be answered but keeping a cool head for now is your best defence to getting dragged down in what ifs.

    I’m sure there are many answers coming your way from more experienced forum members very soon which will give you a better steer on the details, so fear not.

    I hope everything goes well, take care the both of you.

  • Hi 

    thank you for the reply, it is early days I know

     it seemed to ease slightly the worry while he was having radiotherapy for some reason, not sure why and he seems the same as he always was 

    it’s just the dread of the unknown 

    thank you for taking time to listen 

    take care 

    Lesley x 

  • Hi Lesley,

    to set your mind (partially, anyway) at rest. Let me tell you my history.

    April 2024  PSA 16. 

    Diagnosed as Gleason 4 + 5 = 9

    Deemed to be "curable"

    Started HT 14 Jun 2024. Continued since, every 12 weeks, on Prostap.

    20 sessions of RT Oct/Nov 2024. PSA at start 0.9.

    20 Jan 2025 first PSA after RT = 0.06. Told HT will now be for 2 yrs (down from 3 originally Grin)

    04 Sept 2025 latest PSA = 0.02

    Your Dad's numbers may/will be different, but this is the sort of progression you might be looking for.  The RT continues working long after you have had the actual treatment. Once you get a diagnosis it becomes a bit of a slow "plod" with HT and through the RT - don't expect anything to happen overnight. (Pun not intended !)

  • Hi LM

    You don't say if the cancer was contained in the gland which does make treatment easier.

    After RT PSA can vary especially if still on HT.

    You don't give any PSA figures but the big test will come when HT finishes and getting a PSA done about 6 months afterwards will give an indication about how treatment has worked 

    Best wishes 

    Steve 

  • Hi Steve  it had just broken through the prostate but not gone any futher  he’s original pSA was 10  with two years of hormone treatment and 20 sessions of radiotherapy  if that makes sense   Thanks for the reply 

  • Hi thank you for replying 

    that is very helpful, they gave a lot of information to begin with, but not so much to go on afterwards that sounds very similar to my dads treatment 

    he has to have 6 monthly hormones for two years 

    hope you are well 

    many thanks 

  • Yes, makes sense, doesn't sound too bad.

    When he gets his first PSA test , probably a few months away let us know , we can give further guidance then

    Best wishes 

    Steve 

  • Thank you I will do 

    and thanks for the advise 

    I try not to google things anymore 

  • Hi Lesley I'm in the same position as your dad I finished rt and 8 weeks ago and they say I don't need anymore hormone treatment I have a psa test on Thursday and I'm worried as well