Diagnosis too late

Hello Dollycatc66814 

I am so sorry to read your post and please accept my sincere condolences at Mark's passing. Please do remember our Support Line on 0808 808 00 00 (8am to 8pm 7 days a week) is there for you should you need it.

I do try and advise Community members to download the NHS App (if they live in England and Isle of Man) or any other App their Health Authority uses, ask for FULL access to their health records and to check all their test results. As you say if anything feels "wrong" or you don't agree with your team question it and indeed if necessary get a second opinion.

Are you (or the coroner) going to raise this concern about the GP practice with the General Medical Council - you wouldn't want them to make the same mistake again.

Thank you for taking the time to post - it's a great reminder to us all to take an interest in our own medical records and symptoms. If there is anything i or Macmillan can do for you please do let me know.

Kind Regards - Brian.

Hello Dollycat,

Please also accept my sincere condolences for your loss of Mark.

I can only echo Brian's comments. I was the victim of my GP describing a surveillance PSA test "normal - no action required" when it was in fact higher than the limit set by my consultant. I was lucky to pick this up on my online record and had more treatment for this last year.

Thank you for your post which is invaluable as a reminder for us all to double check everything on our records.

Derek.

Hello Dolly

First, I send you and your family my heartfelt sympathy at the loss of your much loved Mark - far too soon ! 

Thank you so very much for taking time to tell us about this when you have so much pain. It’s really brave of you. It also makes me personally feel better because I am now querying some blood results of my own that I have seen on my app and was wondering if I was being a time waster with my GP practice.

I fully understand that the coroners phone call must have churned up so many emotions within you and the ‘what ifs?’ are probably spinning around in your brain.

We all put 100% of our trust in medical professionals and your post confirms what other replies already state - we have to monitor our own health and, as you say, keep on asking. Thank you for sharing this so we can all learn from it and, hopefully, be better for it.

Sadly, your very brave message won’t bring Mark back but I hope the fact that your  post might save many others from a similar experience might, in some small way, make you feel a bit better at such a difficult time.

My heart goes out you you and your loved ones xxx

I am so sorry for your loss, and that you have to face life without Mark.

Please call upon this group for assistance when you need. 

Enfold yourself in your family and let them hold you up. 

Your memories, and theirs, will carry Mark on with you.